EXACTLY!

I see so many special this, and special that, and they are just making it worse! I went from being relatively stable, and minor flairs, with some issues, to...Severely elevated liver enzymes, pancreatitis, sjoghrens from treatments, severe dry eyes, massive anxiety attacks, constipation to diarrhea, and back again. I just want to start screaming!

STOP HELPING ME! what you are doing is the opposite of help! Im tired, and dont know how much more punishment my poor lil body can take.

I don't think they have much of a clue. I was really reluctant to go on any DMD in the first place because I didn't think enough was known about MS or the immune system.

I still feel that way but have climbed on the Avonex bandwagon and now on the Copaxone bandwagon, just bouncing along for the ride. If it makes the docs happy for me to be taking one of these injectables and if it isn't doing me any serious harm that I know of, I'll take my chances and shoot up whatever it is.

"Harm that I know of"--that's one problem, isn't it? So many new drugs that look perfectly wonderful at first have turned out to cause some ghastly type of cancer many decades later, and these drugs haven't been around long enough. But that's just one of my nagging doubts about taking a DMD. I try to keep it on a back burner.

Sometimes I think all the special this or that doctors need to find problems to justify their existence or so you can't sue one day for negligence. I'm on an anti-doctor roll right now, With PPMS DMDS I've tried don't work, Besides MS I'm pretty healthy, have no pain, I'm 54, leave me alone. My PCP is always there for me if needed. I've got better things to do. I've also heard too many stories of "cures" resulting in things worse than the ailment.

We're the guinea pigs for these doctors. They're learning from us. That's one of the reasons I don't use a DMD anymore. Too many side effects and no benefit.

I agree with Kicker......we're alone in this journey. Our doctors can give us meds to relieve some of the sx but for the most part we just need to do what works best for us....individually.

I agree with you all too. I was just diagnosed in Jan with RRMS....but have chosen not to use a DMD and just on LDN at this time.

I have been in the medical field for over 25 years, and my research on the DMD's just did not make sense to me.

I am glad I am not alone in my thinking process....and just a few weeks ago, they said there are two kinds of MS....one that works with some DMD and one that does not.

They just don't know....and that is the bottom line.