Dej,
My husband is a renowned Squeaky Wheel; when he feels he needs to be heard, he complains. And if the person he's complaining to doesn't do anything, he asks for the next higher-up to complain to. He often gets what he wants.

Dej, this is YOUR body-the vehicle that gets you around in life. Not your neuro's body. If he is so autocratic that he doesn't give you voice in your treatment, then I would say a big BYE-BYE!!
Easy for me to say, since so far I'm satisfied with my neuro. But I've dumped a couple due to incompetence or feeling as if I was not being heard...
But really, you have been through the ringer and have felt so ill; don't you at least deserve to be heard in the decision process?

I hear you about how draining this whole disease process is. When I experience the pain, the exhaustion, and the feeling that I am just wasting the oxygen I'm breathing, I am often tempted to just quit. But those who love me won't let me..."Keep fighting" is what I hear, esp from my very ill older sister.
So I fight. And I hope you will, too. Cause we need you. You are smart, brave, funny and chock full of info and support.
We love ya, Dej!