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Old 04-08-2010, 01:53 PM #4
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
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Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
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Hi Eddie, I've been the phase III/extended study for 1 1/2 years. I take it every 12 hrs - it's not a med that stays in your system. It has helped me with foot drop which in turn makes walking easier. As for strength I can't tell as I have always exercised to the best of my ability therefore kept up my muscles/leg strength.
I don't think it regenerates nerves-but I don't know. I don't seem to need it so much before the 12 hrs is up... I used to recognize the need at around 8-9 hrs ...maybe it just doesn't help as much as in the beginning (?) After awhile I think I get used to a new normal-as with Tysabri my QOL is better and that may be the same with Ampyra (Fampridine)
Good luck and hope it helps
Linda
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