I saw a new neuro today. We got the paperwork rolling

An E-Mail Received From a Friend,,,
I thought you might be interested in this report from a friend on AMPYRA!!!

SOME SIDE EFFECTS WITH AMPYRA:
Insomnia, dizziness, headache, nausea, weakness, back pain, problems with balance, MS relapse, burning, tingling, or itching of skin, irritation in your nose or throat, constipation, indigestion, pain in your throat. UTI
GRRRRRRRRRRRRRRR I HAVE MOST OF THESE.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Is it working? If not, drop it like a hot potato.

So sorry, sweety, love, sally
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


AT TIMES I THINK THINGS ARE GETTING BETTER LIKE FOOT DROP, WEAKNESS ON LEFT SIDE, HOWEVER OTHER SYMPTOMS I ALREADY HAVE AND IT SEEMS TO ESCALATE THEM. I NORMALLY TAKE 2, 12 HRS APART SO I AM JUST TAKING ONE A DAY NOW TIL I SEE IF IT BUILDS UP IN MY SYSTEM.

IT IS THE ONLY THING THAT HAS COME OUT TO SEE IF IT HELPS WITH MY BALANCE. HAD AN APPT. WITH MY PCP TODAY AND WAS GOING TO ASK HIM BUT THEY HAD TO RESCHEDULE THAT APPT.

MY NEURO IN ALBUQUERQUE IS THE ONE THAT SAID IF I WANTED TO TRY IT MAYBE IT WILL HELP. GUESS I NEED TO CALL HIM AND LET HIM KNOW WHAT IS GOING ON. IT WAS MEANT TO HELP PEOPLE WITH MS TO BE ABLE TO WALK FASTER IT HAS HELPED SOME OTHERS HAVE NOT. I WAS HOPING IT WOULD HELP BUT DON'T THINK IT WILL. HOPE YOU ARE DOING WELL.

TAKE CARE DEAR
LOVE AND PRAYERS,

Insomnia, dizziness, headache, nausea, weakness, back pain, problems with balance, MS relapse, burning, tingling, or itching of skin, irritation in your nose or throat, constipation, indigestion, pain in your throat. UTI


No side effects when I took compounded 4-AP but noticed when I brushed and spit some blood in sink I thought was coming out of throat. Not a lot, not irritating (didn't know it was there until I spit) and as it didn't seem to help at all, I stopped after trying a month +. Very slight indigestion.

No side effects for me - I'm sure that I was hoping for more, but it helps. I move faster and get around the office without the cane (my boss has noticed a change, my wife does not)

I am of the opinion that all medications can have side effects, which they must post, even if they are rare.
I am sure that many of these side effects are possible but unlikely in the majority of patients.


I called to find out the status of my request-the neuro's office never sent it in they apologized profusely and faxed it in immediately. I swear...are the patients running things? I should get paid accordingly.

Have been on it almost two weeks. probably 50% improvement in walking speed and duration. amazing. I have heard it takes 3 months for full effect?? Does that mean I will see increasing improvement? does anyone know?

My neuro did not say anything about blood/kidney test. Since I am his first patient that he has prescribed ampyra to, I wonder if he know. I did have blood work a few weeks ago prior to my mri so I think I may be covered.

Thanks. I called them today to ask if they received my paperwork from Dr's appointment last week. They said no. I asked if backlogged, he said no..was up to date as of yesterdays paperwork. Its a Friday so Monday awaits. Why do weekends always come at the wrong time? heh

edit - Deb you posted that as I was typing this. Yes I feel your pain.

I saw my neuro. yesterday. We talked about Ampyra and decided that I'll give it a try.

The paperwork has begun. I'll get the blood/kidney test done next week.

So we shall see.

Cheers,

Niko

Reason why Acorda didnt have my paperwork was because i didnt see I had to sign/date form 2x! Faxed it yesterday. Let the paperwork wheels begin.