still in the hospital. Im still pretty sick. I dont feel well enough to catch up on what I have missed, but will do so when I reach home again.

Please know that my experience was RARE on copaxone. dont let it cause a moments hesitation when trying to decide on a DMD for your own treatments. Copaxone is a great drug and has done wonderful things for wonderful people.

I am feeling the love of all of the well wishes. thanks for that. I promise to catch up when I can.

Thanks for checking in, Dej. I hope you recover quickly and are home soon. There's really no place like home to make you feel better.

My only bad experience on C was the 3 times I mustve hit a vein. Wow was it hard to get air in/out of my lungs. The night before I did deep breathing exercises for who knows why. Thank god. I had to lay still as possible, not move, not worry, just get air in and out slowly but surely. My stomach was also in spasm, heart slowed to a crawl but went THUMP..THUMP when it beat. That I dont miss. I still take a shot time to time (maybe 2 per month) when Tysabri isnt cutting it. Hey Dej..I didnt have internet access when I was in hospital! Hope you get out soon.

Dej, still praying for you for a quick recovery. Have they found out your problem yet, like how to treat it? How is the brain problem you have behaving? I hope you are well soon my dear.

When you get a chance let us know how your DH is handling all this news, okay?

I had a bad experience on C too, but mine was different and nowhere near as severe as your's. I started fitting and after stopping Copaxone, the fits waned into oblivion.

It's good to hear from you. Sending many healing prayers.

Do you mind if I ask, how on earth did you hit a vein? Where on earth were you jabbing?

Dej, thanks for checking in! Hope you feel better soon!


That almost sounds like an immediate post injection reaction (IPIR). Feels like someone sucker punched ya in the stomach and took all the air out of your lungs. If it ever happens again, don't lay down. Generally makes it worse and causes it to last for a longer period of time. (found that out the hard way). Sitting still and doing the breathing exercises helps a lot.

well, here I sit, STILL in the dadgum hospital.

The pic line is a God send! no more painful sticks, pokes, blood draws, and BS at all hours, with worries of infiltrates, and the constant 3 day deadline. This puppy can stay in for up to one year.

I was bumped up on my diet today, and have been able to eat jello now and tea without regifting it.

My blood work has now all returned to normal status, and there is talk of maybe going home on Monday. I am told I was much sicker than even I thought I was. I guess I have had this whole pancreatitis circle going on for the better part of the year, and with each new attack I created more and more damage to my organ. it had spread into the intestine and into the duodenum. When I went on IVSM it caused a dramatic drop in inflammation in my entire body, and as the IVSM washed out of my system the inflammation returned with a vengance, and a hunger to take me over.

Thank you for all the wonderful thoughts, wishes, prayers, and hugs. you guys rock. I have not backed up to read the past events of the website yet, I am just too sick to pay attention yet. Even once home, it will take me several days or maybe longer to feel well enough to park myself in front of the computer.

***thanks to my friend for typing this for me, while I kicked back and sipped on my tea****

Dej, glad the bloodwork is improving. Rest up and feel better soon!

Wow Dej. Glad to hear the bloodwork is improving. But sheesh! Your poor body. I hope you feel better soon.