I finally got it, I could jump up and down with excitement, if only I wouldn't fall over when I landed

Not for my MS though, that was diagnosed two years ago.

But yesterday I got a diagnosis of HypoKalemic Periodic Paralysis. I have attacks of full body paralysis, even facial muscles, muscles that affect swallowing, and muscles that assist in breathing. I have had these for six years now and just finally got the diagnosis yesterday! But I was put on a medicine for it in February and have not had a full attack since.

We now now that I have hypoglycemic issues, but it fluctuates drastically so I have to really watch my diet. But that also goes along with controlling the paralytic attacks.

So now hopefully with watching my diet, carefully planning my activities, and taking all of my medicines I can get at least that disease under control!

So now I've got MS, POTS, and HypoKPP. Oh and my doctor brought up that I might have MENS with what my blood sugars are doing. Really, three things aren't enough, I need to have another! Oh well I'm too happy about finally being diagnosed and treated (not told it's all in your head) to be bummed about anything!!!

I hope everyone else is having a great day!!!

Kristie

I'm sorry you have anything but I'm sure it feels better to have what you go through validated, not to be told "it's all in your head.

I hear you Kristie and Congrats...I think..

Yeah I know, it sucks to be sick. But at least with a diagnosis we are able to start doing something about it and I'm FINALLY starting to get some relief from these paralytic attacks. They make it very difficult to take care of the house and kids.

Thanks.

that's a lot to deal with at one time.
i'm glad that's it all is coming under control.

Hi Kristie,
Sorry to hear that you are collecting more Dx's, but better to know, than not to know, right? I hope the medication works for you.

Are these both inherited disorders? Like in your DNA? Does anyone else in the family have these disorders? Just curious. You don't have to answer these questions. I just thought they were passed down dx's.

Let us know how the medications are working. I hope they stop your problems.

What is POTS? Is that where you get dizzy from posture movements? I also learn something everyday on here. I find it interesting, what can I say?
Feel better