I've had many mri's and from a fast Google see no reason to be concerned about the ENG. You seem safe with the test.

No, this is not what I experienced, but we are all different. I got the pleasure of waking to no consistent walking..... BTW I also have migraines, but the two are not related.

Do you belong here -I have no idea - if you have MS, yes. If not there are many forums here. You will feel comfortable with them - all will give you massive support.

It seems you have been seeking an answer for some time. Many come here for advise-Some are not MS - Some are. If you believe you have MS, I suggest you see an MS Specialist. A review of your scans and a LP (if needed) ... will confirm. I truly wish you well .

Good Luck

~~p~~

There is a symptom I forgot to write about.

I had mono three times when I was a pre-teen and teenager. My immune sysmem was very weak and I also had iron deficency and had to take iron shots/supplements.

My twin sister has had her thyroid taken out. She also has some type of autoimmune disorder that I can't remember the name of.

Is the mono related to anything?

Hi Coffeegirl and Welcome back!

What I would suggest is to have the new tests and MRI's done and see what the results are. There are so many diseases and disorders that can resemble MS in many ways. You want to be sure that you get the right diagnosis.

Many of your symptoms could be MS, or even Migraines with and without the pain. Did you have a LP yet? If the MRI's show lesions in MS areas then get an LP or VEP testing.

I have many of your symptoms and a lot more besides those, but you need to fill the criteria to get a diagnosis, or have a clinical exam that is without a doubt showing MS, and tests to rule out other diseases.

I understand you are anxious to get a name for all your symptoms. I am sure you will, but it takes time. We all had to wait and it is hard, but in the long run it is better to be sure. I wish you luck and nice to meet you.

Just don't let them get to you when they say it's all in your head. Forget they said that, and just go from there. They all say that. Many have heard that term used. It just means they don't know.

So very sorry for all you are experiencing. Wish the answers were a little easier to come by. It must be very frustrating.

On the mono, I have heard and read that mono is suspected that it MAY cause MS. But then there is no way to know that for sure with you. I know my sister had a severe case of mono...but I'm the one who ended up with ms.

You have come to the right place for support. You do fit in here at NT...no matter what you have. Please stay around and keep us updated and feel like you can ask all the questions you have. AND a lot of times it has helped me just to have folks to talk with about things!!!