A more or less sudden onset of incontinence, in my opinion, is worthy of at least a call to the doctor to see if you can get seen on an urgent basis.

It's an emergency, if you think it is.

well, so far it's not an emergency for me yet. I can still go potty without any problems...that area is just numb and feels really weird tho. (make it go away! Being numb in that area is really freaky)

Tonight, I'm feeling really stiff. It's going down my back...from about the level where my bra strap is, down to my toes. The most uncomfortable part of the stiffness and numbness is at my waist (about where the waistband of pants would be) and wearing clothing is driving me nuts. I'm guessing that's allodynia. (sp?) I cant wear my jeans at all, and wearing my cotton shorts is barely tolerable. Sweatpants arent too horrible feeling tho.

It hurts too, right at the base of my spine and in the small of my back. Kind of like something is tightening around my spine. Not bad yet, just annoying.

I dont quite understand the sick feeling I'm feeling. I just feel so uncomfortable. Like I want to crawl out of my body.

I keep falling asleep, it's like I just cant stay awake and I'm so exhausted. This is so annoying. I feel like I'm being tortured and I'm almost to the point where I'll admit to the Kennedy assassination (6yrs before I was born) just to get some relief.

I'm half tempted to call my neuro and beg for steroids, altho I'm pretty sure they wont help me. Didnt work for my left hand last fall and made me feel really really weird. (that was oral steroids...I think if I were begging for 'roids right now it'd be IVSM)

It's only been about 3 days. Woke up like this monday morning. I'd done a ton of walking with my boyfriend and his dad sunday night. Was super exhausted when I got home that night. I remember just before going home, my back felt really tight from all the walking. That's a similar feeling to the weird sensation in my back that I have right now too.

Have you checked for the dreaded UTI?

Not yet, but I dont have any symptoms of a UTI (yeah, I was shocked too).

I havent had one for about a month and a half, and it's iffy that I actually had one then. Had all the symptoms, but the test came back clear. I also had a sinus infection at the same time, so the doctor at the doc-in-a-box I went to gave me an abx that was broad spectrum just in case I did have a UTI.

I may just go to my doctor's office tomorrow (if I can get an appointment) and have them check my blood for vitamin problems or anemia, and I'll pee in a cup for them just in case.

I havent been this tired since I was recovering from having mononucleosis. I think I feel asleep while I was writing this post.

I just hate this stupid numb feeling. I know neuros dont think of numbness as a symptom that needs much addressing, but geeze, it sure would be nice i they had a drug that would make the numbness go away. This is torture! (I'll talk, I'll talk!! just make it stop!!!!!)

Erin, my numbness usually stays below my knees, on and off. When it travels up to one side and I feel unwell (as I describe it), then I know I am in a relapse.

It can travel up the other leg, it did for me in 2003, and it crossed over the whole groin area, being numb there too, yet functional. It only went up to the bra area on one side, the other side to the groin/pelvic area.

At that time I was treated with oral steroids. 100 mgs for three days, then 80mgs for three, 60 mgs..and downward to 10 mgs a day, and then 10 mg every other day for a week. Somehow this worked for me. It was a low, oral dosage, but for a longer period of time.

I hope your not in a relapse, "but when it doubt, check it out."

I'm supposed to go to the neuro on the 12th of may, but I dont know if I can wait that long. If the steroids would work on me, I'm betting the sooner I take them the better.

I'm calling the neuro in the morning, asking him about the steroids...

I'm going to go to my regular doctor and tell them to check me for infection or a low vitamin problem or something because of how tired I am.

This is really scaring me because it's sort of interfering with how I'm walking. (everything from my low back on down the right side is very stiff and doesnt feel like it wants to move very well)

I'm afraid to go to sleep because I'm scared I'll wake up in the morning unable to move.

I am so tired right now tho, that I'm going to bed like 3 or 4 hours earlier than I usually do (I'm insomniac) and I'm just going to lay here in the dark watching television...probably watch a Stargate Atlantis dvd. I'm not expecting to sleep, but I think if I lay there and just rest, maybe that will help.

I just cant stand that numb feeling around my hips and stomach. It's so freaking uncomfortable. Making me want to cry.

I dont really expect steroids to help me any. I was looking for my bottle of neurontin today (cant find it) and found my mom's stash of oral pred. (she had an allergy problem last year she was taking pred for) and I was so seriously tempted to borrow them. I think she had almost enough for a full prescription of 'roids that I'd need. (I have 6 extras that were left over from my oral pred Rx last fall...my stash and her stash might have equaled a full Rx)

She had like 5 bottles of oral pred and they all looked like they were close to being half full.

I'm so tempted to borrow hers, but I think I want my own Rx...

Right now I kind of feel like I did last year after I had IVSM and had the crash a day or two later (didnt get the taper for that) I feel like I did about 3 or 4 days after the crash...still wiped out but able to actually get up and walk across the room to the potty.

All I want to do is sleep. I just dont sleep in my bed, but stick me in my computer chair and I sleep...and that chair is no where near being comfortable to sleep in. (might explain the back pain)