I can't do much more than commiserate with you. I'm 100 miles from a specialist. My neuro (20 miles away) is not a specialist, nor do I have much confidence in his grasp of MS. I do, however, like to have a neuro locally in case, as you said, I end up in the hospital with a flare or some other neurological thing.

For me, seeing my Neuro's Nurse/practitioner was great. She was female, listened better to me, answered my questions, gave better more realistic advice about issues I brought up than Neuro ever did. I'm on 5th neuro, 3 moved, one I found not adequate, so I've experience change often,.

Like Kicker, I prefer to talk to my MS Specialist's Nurse/practitioner.

There is not much that can be done for me other than adjust/add/eliminate medication. I like my neuro doctor too but he is only necessary if something goes very terribly wrong. He is a good doctor.

I agree that a letter would have been nice. I can understand your frustration and it is a drag to not have faith in those who are treating you.

When my favorite doctor (regular doc, not a neuro) left to move to California about a year or two ago, they didnt send me any letters informing me. I found out he was leaving when I went to the after hours walk-in clinic (used to be run at the same office as my doctor's, but they moved. they werent actually affiliated with my doctor's office. Just coincidence they were there.)

There's a PA in the after hours clinic that works at my regular doctor's office. She's the one who told me that my favorite doctor was moving. I really miss that doctor. He took me seriously.

I have a new favorite doctor, but the last time I went to see him, I got the feeling he was tired of dealing with me. (I hadnt seen him for six months, then had to go see him about 3 times in a month) I still like my current doctor. His dad has MS, and I feel that that doctor might have a little more understanding about the crap that the MS does because he's seen it in his dad.

I'm about to call him if my neuro's office doesnt call me back soon. (my neuro is ancient and takes half days a lot...it wasnt even 10am and he'd already left for today, and I need help today)

When the ancient neuro retires, I'm not expecting them to send me a letter informing me...I'll bet they'll just toss me to one of the other neuros in the office. (who all seem to charge a heck of a lot more than current neuro)

Thanks as always for the encouraging comments you guys. After all that, they called early and said my appointment had to be rescheduled. Can't win!!! So now it's May 20 -- it doesn't really matter being there's nothing new to offer at this point, just checking in. My daughter-in-law came for a visit anyway, went grocery shopping for me and got some take-out for supper. So the day turned out better than expected!