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#1 | |||
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Elder
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I tried a lot of stuff last night to help it. Tried wearing my shoes, wearing socks, barefoot. Wet washcloths...warm and cold...
Drove me bananas! The neuro-burn started to let up after about 4am. I finally fell asleep around 5am...just woke up a couple of minutes ago. Feet are still all tingly, but at least they're not burning yet. It does feel like the neuro-burn is not as intense. Right leg feels like it's the one being picked on by whatever is setting off the symptoms tho. I want to sleep some more, but the 12yr old house guest upstairs sounds like she's tap dancing on the floor...or something. Cant wait to get the house back to where there arent people waking me up all the time. I'm still so tired right now that I'm a little dizzy...I'm really hating this! Thing that bugs me is that the house guests dont think that stress can cause such bad MS symptoms. They dont think it's as bad as I'm describing. I think they need to try on the MS Symptoms Suit for a bit! Of course, they'll need a big shot of novocaine in their feet before putting it on!
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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"Thanks for this!" says: | Lady (05-09-2010) |
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#2 | |||
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Member
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Quote:
Where can I get one of those suits? OMG! How that would help when people don't believe me because I always look healthy! Of course I would need one in "Crohn's" and one in MS/CNS issues, and one in sleep deficit resulting from the other two!
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We live in a rainbow of chaos. ~Paul Cezanne . |
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"Thanks for this!" says: | Lady (05-09-2010) |
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#3 | |||
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Elder
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There's a thread on the forum somewhere, you'll probably have to search for it, where we were all thinking up different ways to describe the symptoms of MS.
We made up an imaginary symptom man (cant remember what we called him now) and then devised how to give him the symptoms of MS....duct taping flippers to his feet, making him wear glasses with the wrong Rx in them that are smeared with vaseline and covered in stuff so he couldnt see. The thread went for quite a while. I swear, anyone who thinks that MS "isnt that bad" needs to be strapped into the Symptom Suit for a week or two and also given liberal applications of novocaine in their extremities to simulate numbness. I know a few people this week who could use a month or so in the Symptom Suit as punishment for irritating me while I've been floating around in this stupid flare. Can you tell I'm grumpy? and it's not just the IVSM and the prednisone taper that's making me nuts. (houseguests still. will. not. leave. ARGGGH!!!)
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~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~ ~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~ |
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"Thanks for this!" says: | Lady (05-09-2010) |
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#4 | |||
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Magnate
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I take Clonazepam for burning-type pain (Klonopin). Don't know if that would help the feet burning you're having. It certainly helps my pain/burning I have.
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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