I really do not have foot drop -- more like leg drag. My problem is stiffness and pain. Maybe that is why he does not think it will help. My neuro mentioned that there was a program to help with costs too. I assumed that I would not be eligible. I am not going to give up although I may have to wait until it has been on the market for six months.

Barb, I am so happy for you. No new lesions, and a good clinical exam. That's wonderful.

I had the same report as you in March and it made me happy too. I can't walk on my heels very well either, I must practice, practice makes almost perfect.

I fall backward if trying to walk on my heels. But I can stand with my feet together and close my eyes and not twitch, get a head tremor, or fall over anymore.

When I am tired, my left leg drags or swings out. Not foot drop either, just it gets wacky when I am fatigued. I know it's nap time then.

My calves get spasticity after walking, because I don't do that too much other than in the house. One store and I am done in. But I have to get out sometime.

I hope your ins comes through for you for Ampyra. My ins says, no new drug for 1 year out of clinical trials. I hope the co-pay is not high for you. I haven't heard much about the drug or it's cost.

Love to hear your good news!!

Great news Barb!!!!! When Jim was dx'd with foot drop his leg dragged too. So bad he went through a new pair of shoes every month. The military couldn't keep up while he was awaiting discharge.

Your news: CONGRATS!!! This is awesome barb

As for your choice to go DMD free.. my neuro advised me to be on a DMD, however I said no way, I know my body, I know my diet's controlling this crappy disease. For me, it was the right choice. For him as the neurologist, it was playing the roulette with my disease, but I think he knows deep down what you said... mild. My GP used the mild word with me. Let's hope we both remain mild-ies !