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Old 05-13-2010, 11:23 AM #1
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That is great news, Barb!!! Yahoo!!!
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Old 05-13-2010, 11:32 AM #2
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awesome! I know you were so worried, because you cant handle any of the common DMDs and I am so pleased that you remain stable. Rock on!
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Old 05-13-2010, 01:34 PM #3
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WTG, Barb.
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Old 05-13-2010, 01:52 PM #4
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My neuro did mention the new oral meds that have not been approved by the FDA yet. He also said that I would of course want to try one of them. But a few minutes later he mentioned that I have been stable with out being on a DMD. I think he is a bit unsure of what to advise. I'll cross that road whenever they are approved.

Dejibo -- Are you back on copaxone?
Last edited by barb02; 05-13-2010 at 02:31 PM. Reason: typos
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Old 05-13-2010, 02:24 PM #5
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Yay Barb!!! So happy for no new lesions.
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Old 05-13-2010, 03:37 PM #6
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Woo hoo Barb!!
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Old 05-13-2010, 04:58 PM #7
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Really glad to read the good news, Barb...
I've been reading about people's experience on Ampyra on the NMSS site on Facebook...almost everyone has seen improvement in their foot drop as well as tingling/numbness lessening, cognition improvement and vision improvement. My neuro said he saw all of these in patients in clinical trials through him.
So maybe you'll see improvement, too. by the way, the drug company is helping patients defray the costs...my neuro had me fill out a form that is sent to the drug company (at least I think that's where it went). It then goes to a coordinator who works with the insurance company to figure out how much they'll chip in...at least that's what I've been told.
Don't give up on trying this drug...
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Old 05-17-2010, 05:56 PM #8
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Quote:
Originally Posted by barb02 View Post
My neuro did mention the new oral meds that have not been approved by the FDA yet. He also said that I would of course want to try one of them. But a few minutes later he mentioned that I have been stable with out being on a DMD. I think he is a bit unsure of what to advise. I'll cross that road whenever they are approved.

Dejibo -- Are you back on copaxone?
Your news: CONGRATS!!! This is awesome barb

As for your choice to go DMD free.. my neuro advised me to be on a DMD, however I said no way, I know my body, I know my diet's controlling this crappy disease. For me, it was the right choice. For him as the neurologist, it was playing the roulette with my disease, but I think he knows deep down what you said... mild. My GP used the mild word with me. Let's hope we both remain mild-ies !
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