[nemsmom]

I have burning pain in my legs that isn't affected by anything touching it. I've had this for over six months now and am on meds at night to help with it.

But now since yesterday, I feel like I have a sunburn on my back. It's not as bad if nothing is touching it, but as soon as anything (even a breeze) touches my back it feels like I have a bad sunburn. It's driving me nuts! I think this is the only time I have ever wished that I could be a nudist. Even my bra and shirt make it hurt. Unfortunately the Gabapentin I take doesn't help and I can't take it during the day anyway.

I really want a sick day so that I can just lay in bed all day. But as a stay-at-home Mom I don't get those.

Okay I'm done whining now and I will get back to housework. Just needed to vent for a minute.

[SallyC]

I've had those burning/itchy/can't stand clothes touching, feelings. Some peep find the Neurontin helped, but it didn't help me?

I sometime use clear Caladryl (A clear calamine gel) and it helps some.

Just another little perk of MS, we have to endure.

[kicker]

Lose the bra.

[lefthanded]

Try some benadryl.

[NurseNancy]

you might want to talk to your dr about changing the med you're on.
maybe something else will be better.

[NeuroNixed Craig]

I too have found the burning pain intolerable. Many times simply laying in bed with a sheet over me, or worse, no sheet and the ceiling fan blowing on my skin.

The ultimate, taking any kind of shower. As soon as the water hits my skin it is just as you describe, having a severe sunburn on the torso and back regardless of water temperature.

I've yet to find a med that helps especially as my neurological disease (not MS) progresses involving my arms, hands, and feet, constantly burning. Feet feel like I'm walking on burning sand at the beach.

Sorry! Didn't mean to complain but this post struck a "burning" cord with me so I responded.

[Dejibo]

I have this happen to my feet alot. like standing on hot pavement, only moving doesnt help. its awful!

[nemsmom]

Originally Posted by Dejibo

I have this happen to my feet alot. like standing on hot pavement, only moving doesnt help. its awful!

Man why doesn't the hot pavement just stay where it's supposed to, on the ground, not our feet and backs and anywhere else.

Well I tried the Benadryl last night after the kids were down to bed. It knocks me out so I can't take it during the day. Unfortunately it didn't help.

I have noticed that tags are the worst for irritating this symptom. Luckily I do have some tagless shirts that are at least a little better, unfortunately I only have four of them. Oh well one more incentive to keep up on laundry. I guess I'm also lucky that the area where my bra strap goes around my torso has become numb. So at least that area isn't so irritating.

I will call my neuro in the morning to see if he has anything to add, not that he usually does. Hopefully he wont want me to come in though. I have such a hard time with the four hour round trip to go see him.

And Craig, don't apologize, I'm sorry that you understand exactly what I'm talking about, but it does help to know that someone does.

My poor hubby feels so bad, but he is very understanding and supportive. You ought to see him try to hug me without hurting me. It has to be hilarious to watch.

[Lady]

I have tried just about everything. I have it bad on my knees, shins and feet, my hands at times too. Nothing has helped. I was on Neurontin for about 6 years. It helped for a while, then stopped helping. I was up to 3600 mg a day. Tried Lyrica, no help either.

It wakes me from my sleep and burns like they are being put in boiling water, or hot coals on them. It has been this way for years now, just get used it, even thought it hurts so much.

If anyone finds something to help let me know. Sometimes in the middle of the night I will put something menthol on them. As for the neck area, I cut out all labels on all my clothes. Every little string gets cut or pulled out with tweezers, they drive me nutty. So scratchy and itchy.

Notice how many clothes are now being made with ink labels? Even undies. I think it bothers many people, w/ and wo MS.