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Old 06-13-2010, 06:10 PM #21
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Females have testosterone too. Just like I have estriol, estrone, estradiol, progesterone. Testosterone in Men is made in testes, women outer part of ovaries (by what ive read). We both have those 5 just in different amounts.
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Old 06-17-2010, 01:56 PM #22
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Erin,

What are the side effects of Provigil? I'm thinking of starting it and wonder what other problems are caused by taking it???

I think the heat of summer is what causes all this fatigue. Just the warming is enough to make me "more" fatigued.

Can't you get to another Doctor? Maybe a PA (Physician's Assistant) or NP Nurse Practioner that will help you???
Keep working on it until you get answers and the help that you need. It's a constant battle. I know! I've been there. I've been fighting for my depression medicine (name brand) since January, with no results. My Medicare Part D does not want to pay for the name brand and the generic doesn't seem to be working for me. I've had some very difficult times because of this and now I still have to wait another 2 weeks until my appeal is heard.

Keep on fighting!

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Originally Posted by shayna View Post
Erin, I take Provigil when the fatigue is really bad and I need to stay awake and alert. Otherwise I allow myself to take a nap. I don't wake up feeling "rested" but, it's better than it was before the nap. Fatigue is horrible when you know you have a limited amount of energy and you need to make the decision of what you will and will not be able to do that day

I had the strangest feelings in my hands the other day. Both hands fell asleep and it felt like pins and needles sticking into me while at the same time they were a bit numb and I couldn't use them. I was going to call my neuro if it continued but it only happened that one day.

Does your neuro having anyone covering for him/her????????? If not perhaps seeing your GP may help.

I hope things get better for you, Erin.

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Old 06-17-2010, 02:30 PM #23
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Quote:
Originally Posted by Kars10 View Post
Erin,

What are the side effects of Provigil? I'm thinking of starting it and wonder what other problems are caused by taking it???

I think the heat of summer is what causes all this fatigue. Just the warming is enough to make me "more" fatigued.

Can't you get to another Doctor? Maybe a PA (Physician's Assistant) or NP Nurse Practioner that will help you???
Keep working on it until you get answers and the help that you need. It's a constant battle. I know! I've been there. I've been fighting for my depression medicine (name brand) since January, with no results. My Medicare Part D does not want to pay for the name brand and the generic doesn't seem to be working for me. I've had some very difficult times because of this and now I still have to wait another 2 weeks until my appeal is heard.

Keep on fighting!

Kathy in Oregon
I dont take provigil. The person you were replying to does.

I dont take anything for fatigue yet. I talked to one of the other neuros at my neuro's office yesterday and he told me that he couldnt give me anything for fatigue (but he was really generous the day before and wrote me a Rx with 1 refill on it for Valium)

I'm not sure if this is a bunch of BS, but he also told me that my current numbness, pain and fatigue could possibly be a "sign of healing". (umm...yeah, sure...how does that work?)

I know part of my fatigue has to be from my inability to sleep.

I didnt fall asleep till nearly 4am this morning, and woke up at 8am. (my alarm was set for 1045am) I sat around after that, tired and not able to sleep. Around 1030, I went and lay back down and actually managed to sleep till nearly 1pm. Feel a little better now after that. Spasticity across my ribs and diaphragm and lower abdomen is still kind of...spazzy...but the few extra hours of sleep seemed to have helped a teeny bit.



I hope that neuro's claim that all these current symptoms are a sign of healing isnt just a bunch of crap he was saying to get me off the phone.

I may go take another nap. It doesnt help the tiredness as much as I want it to, but at least it's some sleep.
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Old 06-17-2010, 02:33 PM #24
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What are the side effects of Provigil? I'm thinking of starting it and wonder what other problems are caused by taking it???
I take it from time to time and it works well for me. Might make me just a tad hyper but other than that I tolerate it very well. One bonus with it.......it zaps my appetite!
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Old 07-02-2010, 12:49 PM #25
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Hey Erin, how's your fatigue, any better? Definitely not getting at least seven to eight uninterrupted hours of sleep each night is going to add to your ms fatigue and it is cumulative so your symptoms will get worse if you are not sleeping. As contrary as it sounds, a half a zoplicone, (7.5/2) usually does it, and doesn't cause that hangover effect. A few days of effective nights sleep and you may start to feel better. That is if you are not already taking something.

One bad night of sleep for me costs me about three days minimum to recover in fatigue, cog fog and including numbness.

As I wrote to Woodhaven, in her Ritilin thread I just started this drug for fatigue and at a low dose, so far it is the most effective for me to date. Not only is giving me energy without hyperness, but is lifting my cog fog. It does not work like this for everyone however, and is a potent stimulant.
Take care, I hope you are feeling better this weekend.
Sandra
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Old 07-02-2010, 05:14 PM #26
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It started to get better about a week ago. So did some of the numbness I've been having.

Hopefully it'll keep getting better and I wont feel like crap most of the summer like I did for pretty much the entire spring.
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Old 07-02-2010, 07:56 PM #27
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I hope so too! I am sending you huge amounts of energy vibes, not that mine are very strong but I can always share!
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Old 10-27-2010, 07:37 PM #28
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Hi my name is Tamara. I became very sick last year following surgery and just couldn't get better. Severe fatigue, fever, memory/concentration problems, dizziness, etc. They finally tested me for mono and it was positive. I am 41 years old and have been an ICU nurse for 6 years. Anyway I have been sick now for over a year. Still have fever every day, severe fatigue. They checked my mono titers again and the long term levels IgGVCA and one other have quadrupled in the last year to >8 which is as high as they measure. My doctor says I don't have mono however and she is testing me for MS. I have my MRI Saturday. My vitamin D levels are also low at 17. That is the only thing abnormal on my lab work and they have tested me for everything! I feel that all my symptoms point to chronic mono but no one seems to recognize this as a possibility. I feel as if I am searching for an elusive ghost trying to figure out what is wrong with me. I would appreciate any help.
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Old 10-27-2010, 08:39 PM #29
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Welcome Tamara, good to have you with us.

This is an old thread you came in on, so I hope others see you.

MS sometimes can take time to DX. usually, still, by eliminating other diseases.

Just about evy1 with MS has had Mono or EB in their history. I did have Mono in my late teens. It seems that the same herpes virus that causes those diseases and others, may cause MS to raise it's ugly head.?

I hope you have a good rapport with your Doc. so he/she will keep checking and treat you for symptoms in the meantime.

Stay with us and let us know how the DX process goes and how you are feeling.
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Old 10-28-2010, 08:07 PM #30
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Default Swallowing problem

Thanks for the reply. Feeling pretty stressed right now. Ive been having a weird thing happen that I'm wondering if anyone else has dealt with. I will start to swallow and then everything just freezes and I can't finish the swallow. It's terrifying like my throat is closed up and I can't breath. I just breath through my nose and keep trying to finish the swallow. Usually happens with just a regular swallow that I'm not even thinking about, not while im eating. I dont know whats part of MS and what isnt so everything is suspicious. I get dizzy oftem but its mild, a general feeling of being off balance even though im walking fine. Does any of this sound like MS?


e
Quote:
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Welcome Tamara, good to have you with us.

This is an old thread you came in on, so I hope others see you.

MS sometimes can take time to DX. usually, still, by eliminating other diseases.

Just about evy1 with MS has had Mono or EB in their history. I did have Mono in my late teens. It seems that the same herpes virus that causes those diseases and others, may cause MS to raise it's ugly head.?

I hope you have a good rapport with your Doc. so he/she will keep checking and treat you for symptoms in the meantime.

Stay with us and let us know how the DX process goes and how you are feeling.
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