Maybe get checked out or just enjoy the ability to rest while you have it? When we take vacations I stop the Nuvigil and just lay around all week for the most part other than going to eat or maybe one workout a day.

One of the best things for insomnia seems to be exercise early in the day but avoid it near bedtime since that stimulates the mind.

Fatigue is one sx I have quite often. It can sneak up on me out of nowhere with no warning, too. I feel like I've just climbed a thousand stairs non-stop. My legs feel like they each weigh 100 pounds. I can't even raise my arms long enough to brush my hair. It's debilitating. When it hits I just give into it and rest. My body is telling me it's had enough.

The fatigue is letting me sleep, which helps my brain somewhat, but when I wake up after 10hrs of sleep and my body feels like I've been up all night, it's not all that helpful.

I just got up about an hour ago. My back feels really sore, I still feel all achy like I've got the flu or something, and my neck is killing me. I'm supposed to go to physical therapy this afternoon, but I'm considering cancelling that. I just dont think I have the energy to do it. I definately wont have the energy to drive myself home afterwards.

My right arm and hand are also becoming numb, something I just noticed. This is just getting worse and worse. This whole-body numbness is starting to scare me. Especially since I've had some mobility problems from my legs being numb at the start of this flare.

Just called my neuro...he's "out of the office" until June 21st. ARRGGHHH!!!

Erin, I take Provigil when the fatigue is really bad and I need to stay awake and alert. Otherwise I allow myself to take a nap. I don't wake up feeling "rested" but, it's better than it was before the nap. Fatigue is horrible when you know you have a limited amount of energy and you need to make the decision of what you will and will not be able to do that day

I had the strangest feelings in my hands the other day. Both hands fell asleep and it felt like pins and needles sticking into me while at the same time they were a bit numb and I couldn't use them. I was going to call my neuro if it continued but it only happened that one day.

Does your neuro having anyone covering for him/her????????? If not perhaps seeing your GP may help.

I hope things get better for you, Erin.

hugs,
Shayna

The 500mcg (8,333% rda) of b12 I take every day gives a little zip. I have liquid B I havent tried yet but the girl that showed it to me was speeding with a smile. Says 20,000% rda.

One of the partners at the neuro's office called me back. He told me what meds I could take (if my neuro were in town) for the fatigue. Said he couldnt Rx it to me since he wasnt my neuro and he hadnt seen me before. He did answer a few of my other questions (non-medication questions) at least.

I'm not sure I want to take these meds...one of the ones he mentioned was prozac. I'm not a big fan of taking antidepressants (bad experience with one that I was taking for insomnia)

He did tell me that I'm probably still in the flare (regular neuro told me that last week too) and that the fatigue might go away when the flare goes away. I'm hoping the numbness goes away, because if it doesnt, I may change my answer on Sally's question in the Stumble Inn about whether or not I'm happy.

Erin, I take Ritalin. I guess street name would be an 'upper'!!!! It helps some but I still have days that my DH just knows not to expect anything from me. The fatigue was what got me my disability. The person there that gives info to the judge, can't remember what his title is, told the judge that I would be calling in sick at an average of 2 days every 6 weeks. Fatigue gives no warning, the type of nights sleep you have the night before makes no difference. One thing that has helped me though was a sleep study which showed I have sleep apnea. I wear a CPAP and it really does affect my sleep and rest.

Erin,

What are the side effects of Provigil? I'm thinking of starting it and wonder what other problems are caused by taking it???

I think the heat of summer is what causes all this fatigue. Just the warming is enough to make me "more" fatigued.

Can't you get to another Doctor? Maybe a PA (Physician's Assistant) or NP Nurse Practioner that will help you???
Keep working on it until you get answers and the help that you need. It's a constant battle. I know! I've been there. I've been fighting for my depression medicine (name brand) since January, with no results. My Medicare Part D does not want to pay for the name brand and the generic doesn't seem to be working for me. I've had some very difficult times because of this and now I still have to wait another 2 weeks until my appeal is heard.

Keep on fighting!

Kathy in Oregon

I dont take provigil. The person you were replying to does.

I dont take anything for fatigue yet. I talked to one of the other neuros at my neuro's office yesterday and he told me that he couldnt give me anything for fatigue (but he was really generous the day before and wrote me a Rx with 1 refill on it for Valium)

I'm not sure if this is a bunch of BS, but he also told me that my current numbness, pain and fatigue could possibly be a "sign of healing". (umm...yeah, sure...how does that work?)

I know part of my fatigue has to be from my inability to sleep.

I didnt fall asleep till nearly 4am this morning, and woke up at 8am. (my alarm was set for 1045am) I sat around after that, tired and not able to sleep. Around 1030, I went and lay back down and actually managed to sleep till nearly 1pm. Feel a little better now after that. Spasticity across my ribs and diaphragm and lower abdomen is still kind of...spazzy...but the few extra hours of sleep seemed to have helped a teeny bit.



I hope that neuro's claim that all these current symptoms are a sign of healing isnt just a bunch of crap he was saying to get me off the phone.

I may go take another nap. It doesnt help the tiredness as much as I want it to, but at least it's some sleep.

I take it from time to time and it works well for me. Might make me just a tad hyper but other than that I tolerate it very well. One bonus with it.......it zaps my appetite!