I have Medicare D,this is a tier 4 drug, ever heard of the donut hole? Well, unfortunately I fall into that big ole hole big time. ACS has private donors that offer grants to pay for the med. and I can pay a copay or not, but then more money comes out of the amount of my grant. I'm waiting to hear the outcome of funding.

I called twice, just to double check the copay, ACS and my insurance told me the same. I almost can't comprehend a 4500.00 copay. I never paid more than 30.00 in the past, but then I had private insurance with my job.

I even went online to my insurance company...same amount...it is sinking it slowly.lol

I took it for five years until I lost my insurance. It worked well, but I have been taking a chance and fortunately only have one new lesion since I stopped almost three years ago.

Batman, Erin...sorry it didn't work for you, hopefully one day our miracle drug will come along.