Reply
 
Thread Tools Display Modes
Old 06-12-2010, 06:21 PM #1
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default I suddenly feel disabled.

My flare that started out in late April that seemed to only affect my legs seems to have taken on a new life of it's own.

I had steroids (IVSM and a taper) in May that seemed to work. The numbness seemed to back off for a couple of weeks.

About nearly two weeks ago, I woke up and I had numbness again, from around my waist and down to my feet. My left hand (which has been varying degrees of numbness since last fall) seems to have started to get more and more numb, and that numbness seems to have moved to my shoulder and down my ribcage and joined up with the numbness around my waist.

When I stand up, sometimes I feel like I'm about to fall. (no falls yet) My right hand is starting to go numb now, and I'm having problems crocheting and knitting. (that's probably what disturbs me the most)

I have some fairly serious pain in my neck coming from my left shoulder, and it's causing my neck to hurt all the way up behind my left ear. That pain also seems to be on the right side of my neck, just not quite as painful as the left.

I dont feel good. Walking across my bedroom to the bathroom seems to suck all my energy. I feel sick all the time. I'm so tired that not even 12hrs of sleep helps.

I'm really disappointed that this flare seems to have kindled itself back into life after the steroids. It's really starting to scare me. I dont like this feeling and I want it to go away.

Kind of irritated that when I saw my neuro a couple of days after the symptoms started back up, that he didnt even do a neuro check on me, and pretty much blew me off when I told him the symptoms felt like they were coming back.

Hopefully my regular doctor will take me more seriously when I see him on monday. (he's the one who Rx the IVSM to me, after my neuro asked him to do the set up and follow up on the steroids, since my neuro seems to take several weeks a month off...every month. In neuro's defense, he's older and not well himself)
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (06-13-2010), barb02 (06-13-2010), Dejibo (06-13-2010), Lady (06-12-2010)
Old 06-12-2010, 06:56 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

It sounds like MS may be trying to take a stronger hold on you.. I am so sorry. Try to relax and go with the flow, as much as possible. Getting yourself in a panic state is not helping.

I hope this flare will go away soon..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (06-12-2010)
Old 06-12-2010, 07:14 PM #3
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

I think it's causing me to be in a bad mood now.

I went upstairs, and my niece had left the recliner that has the fancy lift function in it (lifts people out of their chair) in the reclined position. She climbed out of the chair and left it that way. I got a bit...irritated at that, and put it in a normal position and then removed the control from it. I'm still waiting to see if I get kvetched at for it. (they came over for dinner, cooked food I'm allergic to and didnt ask me if I was hungry. Everyone is up stairs eating and I'm down here starving to death)

My head hurts, my neck is killing me, whatever I did to it...it feels like my neck did when I lifted something last fall and pinched a nerve in my neck..except when I did that last fall, it was the other side of my neck.

I'm tired, and hungry and no one in my house bothered to ask me if I'm hungry, and then they cooked (sea)food I'm allergic to and I think that's causing me to have an allergic reaction. (started itching a minute or two after I went upstairs.)

This MS is really really starting to tick me off, since I feel like no one in my family seems to give a crap about it. They're probably about to think that the MS is making me crazy. (probably true)

I think I'm just a bit (hurt, irritated, annoyed) that my dad would forget that I'm allergic to seafood and let my brother-in-law cook a meal that I cant eat and that being around the steam from said food being cooked can give me an allergic reaction. The food smells good, which is making me really hungry and I cant drive to get out of the house and go get something to eat that wont potentially kill me. (that's the other thing making me feel disabled, feet that are numb that make me scared to try to drive my stick shift car)
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (06-12-2010), SallyC (06-12-2010)
Old 06-12-2010, 09:59 PM #4
Momma's Kids's Avatar
Momma's Kids Momma's Kids is offline
Member
 
Join Date: Jan 2008
Posts: 861
15 yr Member
Momma's Kids Momma's Kids is offline
Member
Momma's Kids's Avatar
 
Join Date: Jan 2008
Posts: 861
15 yr Member
Default

Baby, come here and sit on Momma's lap...that's a good baby. I know that ole MS is causing all this rukkus on ya right now. Those ole nasty roids don't help when they jump in to make a person feel like The Hulk either.

You just sit here and let Momma hug ya good and tight until you feel better, and you know how Dad's can be...they tend to be a lil forgetful. Ya grandpappy can't remember I graduated from that fancy college, but he remembers ya Uncle Billy Bubba graduatin High School.lol Yeah, ya grandpappy has that selective memory right enough.

It'll be alright baby, maybe it won't last long, and ifn it does...we'll be right here. Let's make this ole swing move cause it ain't no rainy night in Georgia, its hotter n a pepper sprout...

I hope you feel better soon, I have been battlin a flare since last year...just had two days of infusions a few weeks ago. I do declare it is enough to make the devil pray.lol
Momma's Kids is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (06-13-2010), Lady (06-12-2010), SallyC (06-13-2010)
Old 06-12-2010, 11:24 PM #5
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Erin don't you have a boyfriend? I thought you mentioned that. Could you call him and ask him to bring some take-out in? Or can you call one that delivers. Heck, I'd call upstairs and tell them to make me a sandwich and bring it down.

Erin I would get another Neuro. Yours is not helping you and not available enough to you. There is also the possibility that the numbness may be residual damage if you have it a long time. Numbness can stay as long as you are not totally numb and can't walk. It comes and goes for many, or stays for a long time.

I hope tomorrow is a better day for you. Go up and raid the refrigerator.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (06-13-2010)
Old 06-13-2010, 12:52 AM #6
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

My boyfriend lives in another town 50 miles from here, and he works constantly, trying to get his head above water since the economy monster hit him (his dad closed their store, and he's been working jobs that dont pay enough since then)

I had my steroids at the beginning of may (3 days IVSM, and 2weeks of tapered prednisone) The 'roids seemed to work for about two weeks, and then BOOM! the symptoms came back.

I really hope that doesnt mean that the steroids failed.

Today, I've been noticing weakness in my left hand. It kind of feels like it's sprained, and numb. I was eating dinner (finally! went to Carraba's and got some lasagna, chicken Parmesan and spaghetti...and some bread with oil and herb mix and some minestrone soup. Saved the minestrone for tomorrow's lunch) I noticed that my left hand felt weird when I was eating. I cut meat with my right hand and eat with my left...my hand felt strange, and I felt like I was having problems controlling the fork. I'm an ambidextrous eater, so I switched to the right. Fork felt weird there too, but not as much as with the left hand.

My hands feel slick. Anything that I pick up that's smooth feels like it's going to slide right out of my hand.

My left shoulder feels extremely stiff now. It hurts to raise my arm up above the shoulder. Shoulder keeps wanting to pop out of joint. (I'm double jointed in the shoulders...can usually painlessly pop them in and out of joint whenever I want to...just hurts too much to do now)

I'm really annoyed with the numb hand right now, because it seems like some of my dexterity is affected. I just bought $50 in new knitting needles from Knitpicks.com and I'm having such a problem knitting with that hand. Just got those needles today, and it's bugging me that I cant really use them. I did do a little knitting with some scrap to try one of them out, but it was really difficult to do.

I hope I didnt just waste $50 (and I hope this numbness resolves so I can knit and crochet again!!! That's my stress reliever)

My neck is hurting like it did when I hurt my neck last fall, so I'm wondering if this numbness is from that neck injury. I think I re-injured my neck, or maybe the MS is irritating that injury. (or the injury is irritating the MS?) Or it's just the MS trolls in my head being ***h**** screwing around with me.

My sister and her family finally left to go back to their house and I could finally relax. (when they come over, they literally take over the place and even tho she's family, I cant relax with them around...especially when I feel like crap like I do now)

My dad told me that my niece came to him, wondering where the control to the lifting recliner went. She wanted it back. Luckily he was actually happy that I stole the control, and told her that she didnt need it. (she wanted to sit and raise the chair up and down and up and down and up and down and up and down. I dont think we ever told her the chair on the glassed in deck does that...otherwise she'd have been out there too) So I didnt get kvetched at for stealing the control to the chair. Yay!
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
I am suddenly exhausted... whirlwind123 Myasthenia Gravis 4 06-11-2009 06:36 PM
ALS suddenly stole victim's freedom BobbyB ALS News & Research 0 09-26-2008 06:10 AM
Just a reminder, for when you suddenly have MINOR symptoms . . . lady_express_44 Multiple Sclerosis 13 06-13-2008 10:31 PM
Suddenly Single Wiix General Mental Health & Emotional Support 0 01-18-2008 11:58 AM
Suddenly Deaf In My Right Ear S.C. MILLER New Member Introductions 2 10-18-2007 06:15 PM


All times are GMT -5. The time now is 06:52 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.