[Debbie D]

What the heck!! I am in so much pain in my legs. I thought that these stupid spasms would disappear with the cold...what gives? Any info?

This is not fun

[lefthanded]

It's almost summer here in Seattle . . . is it still winter in Naperville?

Hope you can find some relief . . . so you can share it with me!

[gonnamakeit]

My MS friend here gets Botox injections for her spasms and it really helps her.

gmi

[Debbie D]

Hot-86here, no relief except a/c. Do 't u luv
living indoors?
Not me!$

[FinLady]

Debbie, so sorry to hear about the spasms.

My spasms get worse with an increase in humidity outside. Hot or cold doesn't matter with mine.

I hope your doc will find something to help relieve these for you soon.

[SallyC]

((((Debbie))))..Fin speaks the truth. It's the dang damp dank weather.

[Debbie D]

Really? Humidity too? Sheesh...I'm going to ask the doc what to do about this. Baby pain would be so much easier to deal with than this

[NeuroNixed Craig]

Debbie,

Fighting spasms is a tough battle. I've used a cooling vest and taken Baclofen for years but it never made much difference. Well, with this new diagnosis and not being MS, now I know why. The heat intolerance is still there big time and grossly limits my leaving the house. I keep the temp at 71' in the summer and 65' in the winter.

I'm sorry you're having to deal with this, but it's not like it's going to go away. Possibly your docs may be able to diminish the affects which will require a decision on your part. Deal with the current challenges or take on a whole new medical persona due to med's and their side effects? Sometimes that is a tough choice.

My positive thoughts are with you.

[Debbie D]

Thanks...Sandy said yesterday that the humidity does increase them...the pain is the thing I hate though. I have upped the zanaflex almost to the max. Guess it's time to try something a little more plant-like
I can be comfortable in the house, but when we go up to the inlaws' cabin and it's hot there's no way to cool off. I guess I should look up where to get a cooling vest, huh?

[SandyC]

Winter/summer it affects Jim just the same. Which reminds me I need to update how Dantrolene is going for him. It's working! He still has stiffness but no more crossing of the legs and having a mind of their own. He is taking the Dantrolene and medical mj and it's the perfect cocktail. Once they legalize medical mj he'll try going off the Dantrolene. Or it may be that the two together work the best. We'll find out.