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06-18-2010, 01:42 PM
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In Remembrance
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((((Debbie))))..Fin speaks the truth. It's the dang damp dank weather.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | DejaVu (06-19-2010) |
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06-18-2010, 08:18 PM
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Elder
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Really? Humidity too? Sheesh...I'm going to ask the doc what to do about this. Baby pain would be so much easier to deal with than this
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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| "Thanks for this!" says: | DejaVu (06-19-2010) |
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06-19-2010, 12:18 AM
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Member
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Debbie,
Fighting spasms is a tough battle. I've used a cooling vest and taken Baclofen for years but it never made much difference. Well, with this new diagnosis and not being MS, now I know why. The heat intolerance is still there big time and grossly limits my leaving the house. I keep the temp at 71' in the summer and 65' in the winter. I'm sorry you're having to deal with this, but it's not like it's going to go away. Possibly your docs may be able to diminish the affects which will require a decision on your part. Deal with the current challenges or take on a whole new medical persona due to med's and their side effects? Sometimes that is a tough choice. My positive thoughts are with you.
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Craig ~ NeuroNixed Living Life On My Terms No Excuses No Regrets . Richmond, VA USA |
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06-19-2010, 08:06 AM
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Elder
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Thanks...Sandy said yesterday that the humidity does increase them...the pain is the thing I hate though. I have upped the zanaflex almost to the max. Guess it's time to try something a little more plant-like
 I can be comfortable in the house, but when we go up to the inlaws' cabin and it's hot there's no way to cool off. I guess I should look up where to get a cooling vest, huh?
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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06-19-2010, 12:11 PM
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#5 | |||
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Wise Elder
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Winter/summer it affects Jim just the same. Which reminds me I need to update how Dantrolene is going for him. It's working! He still has stiffness but no more crossing of the legs and having a mind of their own. He is taking the Dantrolene and medical mj and it's the perfect cocktail. Once they legalize medical mj he'll try going off the Dantrolene. Or it may be that the two together work the best. We'll find out.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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06-20-2010, 01:28 AM
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#6 | |||
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Senior Member
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(((((Debbie))))) I feel your pain.
This really hot, humid weather is just as bad as the cold of winter. I keep taking my tizanedine, but it doesn't seem to be helping much. Do you notice more weakness in your legs too, even inside with A/C? I really hate this disease!! 
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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| "Thanks for this!" says: | Debbie D (06-20-2010) |
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06-20-2010, 06:01 AM
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#7 | |||
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Magnate
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yep got it winter or summer... any time humidity.. or over do my body... fun fun.. hugsss sorry you are hurting...
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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