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Thought the Stupid Spasms Would Go Away With Winter

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Old 06-19-2010, 08:06 AM #1
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Thanks...Sandy said yesterday that the humidity does increase them...the pain is the thing I hate though. I have upped the zanaflex almost to the max. Guess it's time to try something a little more plant-like
I can be comfortable in the house, but when we go up to the inlaws' cabin and it's hot there's no way to cool off. I guess I should look up where to get a cooling vest, huh?
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Old 06-19-2010, 12:11 PM #2
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Winter/summer it affects Jim just the same. Which reminds me I need to update how Dantrolene is going for him. It's working! He still has stiffness but no more crossing of the legs and having a mind of their own. He is taking the Dantrolene and medical mj and it's the perfect cocktail. Once they legalize medical mj he'll try going off the Dantrolene. Or it may be that the two together work the best. We'll find out.
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Old 06-20-2010, 01:28 AM #3
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(((((Debbie))))) I feel your pain. This really hot, humid weather is just as bad as the cold of winter. I keep taking my tizanedine, but it doesn't seem to be helping much. Do you notice more weakness in your legs too, even inside with A/C? I really hate this disease!!
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Old 06-20-2010, 06:01 AM #4
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yep got it winter or summer... any time humidity.. or over do my body... fun fun.. hugsss sorry you are hurting...
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Old 06-20-2010, 10:05 AM #5
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I actually have noticed weakness...for instance, stepping down off of a curb is difficult. Legs just don't want to do it, even with my brain yelling commands. Is that weakness?
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Old 06-20-2010, 10:12 AM #6
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Jim's doctor told us that even though the Baclofen or Tizanidine isn't controlling the spasms completely, they both cause weakness. The more you take, the weaker your legs will be. Especially with Baclofen. He said that's why they do not like giving large doses for those still walking because it can do this. On the bright side, Tizanidine can actually give you energy. Weird huh?
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Old 06-21-2010, 06:13 AM #7
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Quote:
Originally Posted by SandyC View Post
Jim's doctor told us that even though the Baclofen or Tizanidine isn't controlling the spasms completely, they both cause weakness. The more you take, the weaker your legs will be. Especially with Baclofen. He said that's why they do not like giving large doses for those still walking because it can do this. On the bright side, Tizanidine can actually give you energy. Weird huh?
Sandy -- I had never heard that before that Tizanidine gives you energy. Guess I should take alot more since I can't seem to stay awake these days!! The weakness makes sense being the spasticity actually helps us stand up. Thanks!
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