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Old 07-11-2010, 10:50 PM #1
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Join Date: Aug 2006
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Lady Lady is offline
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Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Hi Bamy,
I have pain from my burning legs and burning feet. Neurontin helped for about 5 to 6 years for my sensory symptoms also, of numbness and tingling, electrical shocks, that wet pant leg feeling, and itchy arms.

It helped a little with the burning but I was up to 3,600 mgs a day. Dragging buttski during the day.

Then it just stopped working for me. I tried Lyrica, for me it made the burning worse. I tried Neurontin again. Still not helping. We our all unique that way. It works for some people and not others.

I had too very, very, slowly wean myself off the Neurontin. I think I tired everything in my doctors arsenal for the MS hug and burning.

LDN has helped many of my sensory symptoms, a bit of the pain too. My balance is better so my legs don't wobble unless in the hot sun or totally fatigued. Of course with relapse all things get worse for me.

I only get the weak wobbly leg feeling when standing still too long. I have to move, walk or something. Standing still makes my legs shaky and feel like they will collapse.

What I try to do if I have to stand for a length of time, is stand with a wide gait. My legs apart for better balance.

Just like the Neuro tests, of standing with your legs together to check your balance, with and without your eyes closed.

With legs apart your weight is evenly balanced, and may not get weak and shaky. That's all I can think of. Others may come along with their ideas.
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