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#2 | |||
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Grand Magnate
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I'm from Missouri (The show-me state, not really but not a believer in U-Tube videos.) Stuff is never certain to me. Too much is easy to fake. Too many believe stuff themselves. 2 people I trust has had Angioplasty with no results. I'm cautiously but hopefully waiting for better evidence.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#3 | |||
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Member
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And if everyone agreed with each other the world would be boring!
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#4 | |||
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Senior Member
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I cannot help but wonder about what criteria needs to be put in place in order for CCSVI to have an impact. In other words, if the nerve is so damaged that CCSVI has no impact on impaired movement.
I watched several of the videos (thank you EddieF) and I am cautiously optimistic about the results. If it was free, I would have the procedure in a heartbeat. |
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"Thanks for this!" says: | dmplaura (12-04-2011) |
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#5 | |||
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Elder
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I want sooooo badly for this to be the fix!!! please, let it be the fix!!! I am standing with cautious optimism waiting for others who have more courage than i to do it first.
Gawd, Ima chicken! I want to know the results tho. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#6 | |||
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Member
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Hi Aarcyn. Criteria is deformed, restricted, squashed, or plainly a vein that is much smaller in diameter then other side causing less flow like stepping on (cheap) garden hose. It just makes so much sense to my mechanical mind that if blood flow is reduced, oxygen is reduced, cells will die. So HBOT which i've read is standard procedure for MS (countries other then mine) works by increasing oxygen to the brain.
That's my guess. My first discussion asking/telling dr to order Doppler (1st step) is Monday. My regular Dr. Neuro I see end of August. He wanted a visit and is 70+ miles away. I believe every single video and just spoke about it with o.r. nurse friend. Simple procedure. Surgeon in NY told me don't hesitate if you need it. Simple. |
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#7 | |||
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Senior Member
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Quote:
The two people that I tracked going through the procedure were in wheelchairs and the Liberation Procedure did nothing beneficial. So I was postulating as to whether a nerve can be so damaged as to not benefit from the operation. Blood flowing and nerves, not sure how it all connects (pardon the pun!). The gabbycats woman had a setback at some point. I keep hoping to get an update. She has a FaceBook page but I was unable to figure out how to access it. (I am computer handicapped ![]() |
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#8 | |||
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Member
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Understood. I guess if lesions or nerves are so badly gone, it may not grow back BUT..would be nice to stop progression at least and this is only if the person has restriction. Did the 2 you follow give dimension of L&R Jugular? Good question. I possibly heard one person say 2mm in one side, 10mm other.
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#9 | |||
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In Remembrance
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Thanks Eddie, I have a friend going for this, in Sept/Oct. I'll let you all know how it goes. She is very excited and optomistic.
I do hope this will be the answer for a lot of us. I wish it could work on all of us.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#10 | |||
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Grand Magnate
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Sally,
Where (state, country) is your friend having it done?
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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