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#2 | |||
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Grand Magnate
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I'm from Missouri (The show-me state, not really but not a believer in U-Tube videos.) Stuff is never certain to me. Too much is easy to fake. Too many believe stuff themselves. 2 people I trust has had Angioplasty with no results. I'm cautiously but hopefully waiting for better evidence.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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#3 | |||
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Member
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And if everyone agreed with each other the world would be boring!
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#4 | |||
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Senior Member
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I cannot help but wonder about what criteria needs to be put in place in order for CCSVI to have an impact. In other words, if the nerve is so damaged that CCSVI has no impact on impaired movement.
I watched several of the videos (thank you EddieF) and I am cautiously optimistic about the results. If it was free, I would have the procedure in a heartbeat. |
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"Thanks for this!" says: | dmplaura (12-04-2011) |
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#5 | |||
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Elder
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I want sooooo badly for this to be the fix!!! please, let it be the fix!!! I am standing with cautious optimism waiting for others who have more courage than i to do it first.
Gawd, Ima chicken! I want to know the results tho. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#6 | |||
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Member
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Hi Aarcyn. Criteria is deformed, restricted, squashed, or plainly a vein that is much smaller in diameter then other side causing less flow like stepping on (cheap) garden hose. It just makes so much sense to my mechanical mind that if blood flow is reduced, oxygen is reduced, cells will die. So HBOT which i've read is standard procedure for MS (countries other then mine) works by increasing oxygen to the brain.
That's my guess. My first discussion asking/telling dr to order Doppler (1st step) is Monday. My regular Dr. Neuro I see end of August. He wanted a visit and is 70+ miles away. I believe every single video and just spoke about it with o.r. nurse friend. Simple procedure. Surgeon in NY told me don't hesitate if you need it. Simple. |
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#7 | ||
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New Member
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Quote:
I tent to mistrust information I see until it is proven. However, there are so many of these videos.. ask yourself.. what do these people have to gain by making these videos? And I thought about it further, all the naysayers out there, depending who they represent, have alot to gain.. have you ever calculated how many billions of dollars are spent each year on MS drugs? So I compare, how much money does anyone stand to gain from doing angioplasties.. and how much money do huge multinational corporations stand to lose if MS found a better treatment, or possibly cure, that does not cost $20-$30,000 per year, per person? |
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#8 | |||
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Grand Magnate
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I am hopeful but with a degree of caution, The best thing I've heard is 2 I know who had procedure but with no success but they are still active in presenting information to others. I'm waiting to hear what Aarcyn says.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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"Thanks for this!" says: | SallyC (07-30-2010) |
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#9 | |||
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Magnate
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Sorry if this is a repeat, but:
http://www.youtube.com/watch?v=E8drm...2c&feature=sub Kerri and Kylie, both Aussies and both post CCSVI! ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: | EddieF (11-28-2011) |
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#10 | |||
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Member
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http://www.youtube.com/watch?v=iu2xN...eature=related
Time for me to get back into CCSVI research. My good, left hand's sensory loss has progressed in 2011. Most light touch is gone except index finger & thumb. I exercised my rear off this yr. Swam 2,100 laps 14x28 pool. I'm also tired of people I know being hosptalized from MS. |
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