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Old 07-26-2010, 08:02 PM #1
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Default CCSVI Pre Post Videos

I've been searching utube for pre/post videos to print, give, share with everyone I see in the med field, support groups ect. Help me grow it?

location performs procedure
http://www.youtube.com/watch?v=f2DiM...eature=related

9gabbycats
PRE http://www.youtube.com/watch?v=JO3Dn...eature=related
POST http://www.youtube.com/watch?v=KYNhYtVojSQ&NR=1

brendaraven
PRE http://www.youtube.com/watch?v=Kj9aQ...eature=related
POST http://www.youtube.com/profile?user=.../4/GwGsrePGYis

kezzcass
PRE http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
DURING http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/watch?v=TtSzG...eature=channel

mammananny
PRE http://www.youtube.com/profile?user=.../8/lcHTdxa_hGQ
POST http://www.youtube.com/watch?v=zk3ydRbChDg
POST http://www.youtube.com/watch?v=JpM7t...eature=related

n33m5
PRE http://www.youtube.com/user/n33m5#p/a/u/1/GH3Ipk8tyVA
POST http://www.youtube.com/user/n33m5#p/a/u/0/PEt5L9oSVe0

z1sargent
PRE http://www.youtube.com/user/z1sargent#p/u/3/HnkLf0aIoVA
POST http://www.youtube.com/user/z1sargent#p/u/1/TjVmSae6qJw

jimmlai
PRE http://www.youtube.com/user/jimmlai#p/u/6/f8uVac1JH-k
POST http://www.youtube.com/user/jimmlai#p/u/2/uJKltquO7Eo

wbaum2
PRE http://www.youtube.com/watch?v=jehRg...eature=related
POST

theYivvie40
PRE http://www.youtube.com/watch?v=XZ1Jg...eature=channel
POST

042720ful
PRE
POST http://www.youtube.com/watch?v=AnBd6...eature=related WA
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Old 07-27-2010, 03:05 PM #2
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I'm from Missouri (The show-me state, not really but not a believer in U-Tube videos.) Stuff is never certain to me. Too much is easy to fake. Too many believe stuff themselves. 2 people I trust has had Angioplasty with no results. I'm cautiously but hopefully waiting for better evidence.
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Old 07-27-2010, 04:36 PM #3
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And if everyone agreed with each other the world would be boring!
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Old 07-27-2010, 04:53 PM #4
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I cannot help but wonder about what criteria needs to be put in place in order for CCSVI to have an impact. In other words, if the nerve is so damaged that CCSVI has no impact on impaired movement.

I watched several of the videos (thank you EddieF) and I am cautiously optimistic about the results.

If it was free, I would have the procedure in a heartbeat.
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Old 07-27-2010, 05:25 PM #5
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I want sooooo badly for this to be the fix!!! please, let it be the fix!!! I am standing with cautious optimism waiting for others who have more courage than i to do it first.

Gawd, Ima chicken! I want to know the results tho.
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Old 07-27-2010, 06:14 PM #6
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Hi Aarcyn. Criteria is deformed, restricted, squashed, or plainly a vein that is much smaller in diameter then other side causing less flow like stepping on (cheap) garden hose. It just makes so much sense to my mechanical mind that if blood flow is reduced, oxygen is reduced, cells will die. So HBOT which i've read is standard procedure for MS (countries other then mine) works by increasing oxygen to the brain.

That's my guess. My first discussion asking/telling dr to order Doppler (1st step) is Monday. My regular Dr. Neuro I see end of August. He wanted a visit and is 70+ miles away.

I believe every single video and just spoke about it with o.r. nurse friend. Simple procedure. Surgeon in NY told me don't hesitate if you need it. Simple.
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Old 07-29-2010, 05:51 PM #7
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Quote:
Originally Posted by kicker View Post
I'm from Missouri (The show-me state, not really but not a believer in U-Tube videos.) Stuff is never certain to me. Too much is easy to fake. Too many believe stuff themselves. 2 people I trust has had Angioplasty with no results. I'm cautiously but hopefully waiting for better evidence.
Kicker,

I tent to mistrust information I see until it is proven. However, there are so many of these videos.. ask yourself.. what do these people have to gain by making these videos? And I thought about it further, all the naysayers out there, depending who they represent, have alot to gain.. have you ever calculated how many billions of dollars are spent each year on MS drugs?

So I compare, how much money does anyone stand to gain from doing angioplasties.. and how much money do huge multinational corporations stand to lose if MS found a better treatment, or possibly cure, that does not cost $20-$30,000 per year, per person?
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Old 07-29-2010, 10:05 PM #8
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I am hopeful but with a degree of caution, The best thing I've heard is 2 I know who had procedure but with no success but they are still active in presenting information to others. I'm waiting to hear what Aarcyn says.
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Old 07-30-2010, 08:48 PM #9
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Sorry if this is a repeat, but:

http://www.youtube.com/watch?v=E8drm...2c&feature=sub

Kerri and Kylie, both Aussies and both post CCSVI!
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Old 11-28-2011, 05:27 PM #10
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http://www.youtube.com/watch?v=iu2xN...eature=related

Time for me to get back into CCSVI research. My good, left hand's sensory loss has progressed in 2011. Most light touch is gone except index finger & thumb. I exercised my rear off this yr. Swam 2,100 laps 14x28 pool.
I'm also tired of people I know being hosptalized from MS.
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