Reply
 
Thread Tools Display Modes
Old 07-26-2010, 08:02 PM #1
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default CCSVI Pre Post Videos

I've been searching utube for pre/post videos to print, give, share with everyone I see in the med field, support groups ect. Help me grow it?

location performs procedure
http://www.youtube.com/watch?v=f2DiM...eature=related

9gabbycats
PRE http://www.youtube.com/watch?v=JO3Dn...eature=related
POST http://www.youtube.com/watch?v=KYNhYtVojSQ&NR=1

brendaraven
PRE http://www.youtube.com/watch?v=Kj9aQ...eature=related
POST http://www.youtube.com/profile?user=.../4/GwGsrePGYis

kezzcass
PRE http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
DURING http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/profile?user=.../6/9M5YI7go9Qo
POST http://www.youtube.com/watch?v=TtSzG...eature=channel

mammananny
PRE http://www.youtube.com/profile?user=.../8/lcHTdxa_hGQ
POST http://www.youtube.com/watch?v=zk3ydRbChDg
POST http://www.youtube.com/watch?v=JpM7t...eature=related

n33m5
PRE http://www.youtube.com/user/n33m5#p/a/u/1/GH3Ipk8tyVA
POST http://www.youtube.com/user/n33m5#p/a/u/0/PEt5L9oSVe0

z1sargent
PRE http://www.youtube.com/user/z1sargent#p/u/3/HnkLf0aIoVA
POST http://www.youtube.com/user/z1sargent#p/u/1/TjVmSae6qJw

jimmlai
PRE http://www.youtube.com/user/jimmlai#p/u/6/f8uVac1JH-k
POST http://www.youtube.com/user/jimmlai#p/u/2/uJKltquO7Eo

wbaum2
PRE http://www.youtube.com/watch?v=jehRg...eature=related
POST

theYivvie40
PRE http://www.youtube.com/watch?v=XZ1Jg...eature=channel
POST

042720ful
PRE
POST http://www.youtube.com/watch?v=AnBd6...eature=related WA
EddieF is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 03:05 PM #2
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

I'm from Missouri (The show-me state, not really but not a believer in U-Tube videos.) Stuff is never certain to me. Too much is easy to fake. Too many believe stuff themselves. 2 people I trust has had Angioplasty with no results. I'm cautiously but hopefully waiting for better evidence.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 04:36 PM #3
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default

And if everyone agreed with each other the world would be boring!
EddieF is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 04:53 PM #4
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default

I cannot help but wonder about what criteria needs to be put in place in order for CCSVI to have an impact. In other words, if the nerve is so damaged that CCSVI has no impact on impaired movement.

I watched several of the videos (thank you EddieF) and I am cautiously optimistic about the results.

If it was free, I would have the procedure in a heartbeat.
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (12-04-2011)
Old 07-27-2010, 05:25 PM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I want sooooo badly for this to be the fix!!! please, let it be the fix!!! I am standing with cautious optimism waiting for others who have more courage than i to do it first.

Gawd, Ima chicken! I want to know the results tho.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 06:14 PM #6
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default

Hi Aarcyn. Criteria is deformed, restricted, squashed, or plainly a vein that is much smaller in diameter then other side causing less flow like stepping on (cheap) garden hose. It just makes so much sense to my mechanical mind that if blood flow is reduced, oxygen is reduced, cells will die. So HBOT which i've read is standard procedure for MS (countries other then mine) works by increasing oxygen to the brain.

That's my guess. My first discussion asking/telling dr to order Doppler (1st step) is Monday. My regular Dr. Neuro I see end of August. He wanted a visit and is 70+ miles away.

I believe every single video and just spoke about it with o.r. nurse friend. Simple procedure. Surgeon in NY told me don't hesitate if you need it. Simple.
EddieF is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 07:55 PM #7
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default

Quote:
Originally Posted by EddieF View Post
Hi Aarcyn. Criteria is deformed, restricted, squashed, or plainly a vein that is much smaller in diameter then other side causing less flow like stepping on (cheap) garden hose. It just makes so much sense to my mechanical mind that if blood flow is reduced, oxygen is reduced, cells will die. So HBOT which i've read is standard procedure for MS (countries other then mine) works by increasing oxygen to the brain.

That's my guess. My first discussion asking/telling dr to order Doppler (1st step) is Monday. My regular Dr. Neuro I see end of August. He wanted a visit and is 70+ miles away.

I believe every single video and just spoke about it with o.r. nurse friend. Simple procedure. Surgeon in NY told me don't hesitate if you need it. Simple.
No, I did not make myself clear.

The two people that I tracked going through the procedure were in wheelchairs and the Liberation Procedure did nothing beneficial.

So I was postulating as to whether a nerve can be so damaged as to not benefit from the operation. Blood flowing and nerves, not sure how it all connects (pardon the pun!).

The gabbycats woman had a setback at some point. I keep hoping to get an update. She has a FaceBook page but I was unable to figure out how to access it. (I am computer handicapped)
Aarcyn is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 08:05 PM #8
EddieF's Avatar
EddieF EddieF is offline
Member
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
EddieF EddieF is offline
Member
EddieF's Avatar
 
Join Date: Oct 2009
Location: USA
Posts: 702
15 yr Member
Default

Understood. I guess if lesions or nerves are so badly gone, it may not grow back BUT..would be nice to stop progression at least and this is only if the person has restriction. Did the 2 you follow give dimension of L&R Jugular? Good question. I possibly heard one person say 2mm in one side, 10mm other.
EddieF is offline   Reply With QuoteReply With Quote
Old 07-27-2010, 08:10 PM #9
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Thanks Eddie, I have a friend going for this, in Sept/Oct. I'll let you all know how it goes. She is very excited and optomistic.

I do hope this will be the answer for a lot of us. I wish it could work on all of us.
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 07-28-2010, 06:39 AM #10
kicker's Avatar
kicker kicker is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default

Sally,

Where (state, country) is your friend having it done?
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
CCSVI-I can't help but think that there actually my be something to this! Riverwild Multiple Sclerosis 75 06-30-2010 07:23 PM
CCSVI Video SallyC Multiple Sclerosis 5 06-29-2010 09:04 AM
CCSVI question Aarcyn Multiple Sclerosis 7 03-09-2010 06:43 PM
Ccsvi Jules A Multiple Sclerosis 3 09-13-2009 12:08 AM


All times are GMT -5. The time now is 10:42 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.