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Old 07-30-2010, 05:22 PM #1
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Sorry to hear that Nancy. From someone (me) that takes 120mg baclofen/day and still gets spasms, buy a table-top hand cycle and start cranking every day. Increase amount of oxygen going thru your lungs/blood and let me know if it helps. Swimming every other day here and it helps my legs alot for a few hrs after. Head feels better too.
I don't know if i'm allowed to post a link to a online retailer but thats where I bought mine and love it. It's made for your legs while using computer.

Honestly I also think your MS is progressing. Just as I typed that, my legs started tap dancing (spasms) and I got out of pool 2 hrs ago! grrr..
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Old 07-30-2010, 06:01 PM #2
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I'm sorry that you're going through this at the moment NurseNancy, and I do think it's MS related.

Essential tremors and those jerks, called myoclonic twitches, are right up there on the long list of MS symptoms.

I once had a leg jerk/spasm so severe, that I damaged a tendon in my knee, but I've not had them in my hands.

As already suggested I think this is another one for your Neuro.
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Old 07-30-2010, 10:04 PM #3
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Hi. I have frequently on the old forum recommended Magnesium for this condition. I have to take 900 plus units per day for this. I take Mag Oxide and Mag Taurate. The first is cheaper and easier to find in health stores. A neurologist recommended this for me over 20 years ago when i could not take Baclofen or the other drug I tried. It stops the jerks, which would go on all night if I did not take the Mag. If I take half the dose, the jerks continue, so it's dose sensitive. It also helps spasm, in fact, my spasms were
especially bad even more than jerks at the time it was recommended.
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Old 08-01-2010, 12:34 AM #4
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Quote:
Originally Posted by Snoopy View Post
Judy,

I wonder if what you are experiencing is Myoclonus. I get tremors and twitching/jerking periodically and use Klonopin (Clonazepam)

Here is some information about Myoclonus:
http://www.ninds.nih.gov/disorders/m..._myoclonus.htm
Exactly what I have used for my tremors and myoclonic jerks. My MS presented with these tremors, in 1978. I take Clonazepam. My nursing career suffered due to these tremors. But the drug worked.

Midway though my career, I had to switch to a NY Financial desk job.
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Old 08-01-2010, 03:28 PM #5
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thanks for the feedback everyone.
snoop, that was a good article.

i see my neuro in a wk or so so i'll ask him about your suggestions.
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Old 08-03-2010, 04:41 PM #6
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I do not have MS (I hope not anyway)- I do have tremor and jerks. Magnesium originally seemed to help the tremor and jerking, but recently the tremor has returned. The jerking is still around 99% controlled. If you do long term magnesium supplement, I recommend the chelated types since the body seems to absorb them more efficiently, and with magnesium, that is good. The standard type can give you intestinal problems.



Quote:
Originally Posted by Mariel View Post
Hi. I have frequently on the old forum recommended Magnesium for this condition. I have to take 900 plus units per day for this. I take Mag Oxide and Mag Taurate. The first is cheaper and easier to find in health stores. A neurologist recommended this for me over 20 years ago when i could not take Baclofen or the other drug I tried. It stops the jerks, which would go on all night if I did not take the Mag. If I take half the dose, the jerks continue, so it's dose sensitive. It also helps spasm, in fact, my spasms were
especially bad even more than jerks at the time it was recommended.
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Old 08-05-2010, 07:08 PM #7
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Concerning intestinal reaction to Magnesium, The gentlest forms are Oxide and Taurate.
They do not bother me, and I have very sensitive gut to many harsher medications, including the Mag. the Physician "prescribed". However, my forms are more expensive.
I hope I can still get them in the future, have enough money or that the gov't does not
put them all on restrictive prescription. I take a little Klonopin but it does not do as much as mag for my Myoclonus. I also take 1000 mg of Calcium per day, not at the same time as Magnesium as they are antagonists. And of course D3 1000 units.

You can't imagine how bad my jerks are if I don't take this. I fear greatly what will happen if in my very old age I am deprived of this remedy. Jerking all night is totally
exhausting.
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