i'm so sorry about your predicament pooch.
i had that a couple of yrs ago and i can relate to the sheer terror about being out in public.

i would run this past your neuro, or pcp. maybe they can help with a med, or diet or something.

please keep us posted.
i'm constipated most of the time and thankfully have outgrown some of those sx's.

I would love to outgrow many symptoms including this one.

Pooch - I have that crazy symptom as well. I don't feel any lower intestinal pain or discomfort that one normally would get with something like IBS, food intolerance or an intestinal virus. I just don't feel it so when I get the feeling that I have to go now, I best do it immediately. But, again, I rarely feel anything in my lower intestines.

I have also been so constipated that I am incontinent and don't feel the incontinence. Figure that one. I wear a pad during those times.

My upper stomach is a different story as it will cramp up so much you can see the outline of my stomach. That hurts. Then I am on a liquid diet until the damaged nerves calm down. I have the hug constantly to varying degrees but when it increases, I find I have an increase in stomach spasms.

Like Judy mentioned, talk to your neuro or pcp to get some recommendations. In the meantime others have given some great advice.