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Old 08-04-2010, 09:23 AM #1
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I might cancel to avoid any stupid, useless confrontation. Ask yourself, is there anything for you to gain by going or is it just a lose of time and energy (Of course I'm very anti-doctor now, so consider that)
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Old 08-04-2010, 10:57 AM #2
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i say cancel the appointment.
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Old 08-04-2010, 11:37 AM #3
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Why do these doctors think they're the ultimate and last word? Seriously, they really do have an air of superiority about them that is really annoying. Yes, I know they went to school and everything........that doesn't make them the end all know all.

They'll never admit it but they just don't know everything about MS and how if effects people. Everyone with MS is different. Those who respond well to the DMD's are fortunate. Those who don't do better without the meds. Why can't they just admit it?

Oh yeah........."nothing" doesn't pad their pockets.
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Old 08-04-2010, 11:46 AM #4
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IMO lies eventually catch up to you...I'd suggest either cancelling or telling him you are the consumer of health care, and you have final say...I'm a wet noodle too...easier to tell you what to do than do it myself
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Old 08-04-2010, 11:54 AM #5
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I have cancelled 3 times now. The office called back and said I really needed to keep this appointment with the man. I asked if I could see the PA instead, and was told no, since its my yearly check up it must be with the MD.

I am an honest girl. I think i will just sit down and tell him the truth. It will help to have my DH on my side this time.The last few times I spoke about stopping the drugs, he would always use scare tactics on my DH and explain to him how important it is to just keep shooting. How dangerous it was for me to walk away. I was risking a WC...So, each and every time the DH would end up being scared, saying "he is the MD,he must know what he is talking about." and then ask me to please keep taking the meds. This time DH has seen the changes and is pleased with my progress OFF the meds.

I just have to screw up my courage and spit it out.
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Old 08-04-2010, 11:57 AM #6
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I took myself off DMDs 4 years ago after being on Avonex for 4 years (tired of side affects) and a few months of Copaxone (horrible side affects also).My neuro changed his whole attitude toward me when I refused to "try" another med..I haven't been back to neuro in 4 yrs.Whats the point? My PCP treats my symptoms. I feel better off the DMDs and I have not had any exaserbations, so why put my body through the stress of taking a med. that may or may not help.
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Old 08-04-2010, 12:27 PM #7
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When I quit taking C last summer, I told my neuro that I'd stopped, and he was like..."oh...Okay. Why?". I told him why (he'd said something about how he didnt think the injectible drugs work to me a few months before) and he said that was fine with him....probably because he didnt think they worked anyways.

He still wont give me LDN tho...he was totally willing to give me a stabby drug that he didnt believe in, but wont give me a pill that he doesnt believe in. Dont understand that.

He did say that if I could find someone who'd Rx LDN he was ok with that. He just wasnt going to be the one to Rx it to me.
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Old 08-04-2010, 12:29 PM #8
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i'm one for voting on the truth. but i also so how hard it can be to talk to some drs. at least you will have your dh there. and, your physical condition (improvement) speaks for itself.

you could also consider sending him a letter.
either way he may toss you out of his office.

try saying ... i know you want to help me but
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Old 08-04-2010, 12:41 PM #9
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You can do it, Dej!

Your doctor works for you. He can give you his educated advice but in the end it's you that holds the final say.

Don't let him bully you. And I hope your DH will back you up when you tell the doc that you know your body better than anyone.

And in the end it will be you that decides whether or not to keep him on your team. If he quits because of this then you're better off without him. You're not a guinea pig.
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Old 08-04-2010, 12:46 PM #10
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Quote:
Originally Posted by KajunButterfly View Post
I took myself off DMDs 4 years ago after being on Avonex for 4 years (tired of side affects) and a few months of Copaxone (horrible side affects also).My neuro changed his whole attitude toward me when I refused to "try" another med..I haven't been back to neuro in 4 yrs.Whats the point? My PCP treats my symptoms. I feel better off the DMDs and I have not had any exaserbations, so why put my body through the stress of taking a med. that may or may not help.
I think this is a good point and if I weren't on a MS med or having MS issues that my pcp couldn't address I probably would just skip the neuro appointments especially if you aren't seeing eye to eye with this particular doctor.

I'm glad you are considering being honest with him or imo it is a waste of time to even go.

Just playing devils advocate I have to say in a way I appreciate a physician that is willing to stand by his beliefs as I have seen far too many that don't give a rip enough to debate a point when a patient is making a decision that they don't agree with....not that he needs to be nasty about it though.

FWIW I don't believe they make any money off the medications they prescribe and know for a fact that drug reps aren't allowed to give the gifts like in the past either. I think it is more about docs being comfortable and infavor of attempting to treat with medications sort of like "here is all we have be thankful for it and use it". Not saying that is correct just a thought.
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