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Old 08-17-2010, 07:16 PM #10
ssusan ssusan is offline
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Join Date: Sep 2006
Location: W. Mass
Posts: 28
15 yr Member
ssusan ssusan is offline
Junior Member
 
Join Date: Sep 2006
Location: W. Mass
Posts: 28
15 yr Member
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Good you told the truth imho. You had zero to gain by not telling the truth.

I was going to suggest bring up alternatives. I was on Interferons for 10 years, Avonex 7 1/2 and 2 1/2 on Rebif. I had lots of sx and I continued to go downhill. Never skipped a shot in 10 years.

I went off of Rebif 6/09 and started Cellcept. It's oral, no sx, and sssh...(afraid to say it outloud) but MS has been stable. Potential sx are scary, but I'd lost my mobility, can only work very part-time, hey, I could get hit by a bus crossing the street. I decided after saying no to Cellcept for 2 years, it is worth the risk.

With the Cellcept and the Ampyra which I only started 2 weeks ago, I feel like the quality of my life is improving-finally.

I sure wish I had switched from the Interferons long ago.
FWIW
-Susan
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