legzzalot,

The National MS Society has S'Myelin for kids which you and your daughter might find helpful.
http://www.nationalmssociety.org/mul...lin/index.aspx

Since I was dx'd before having children my kids have grown up with the disease. We never told them Multiple Sclerosis or MS, I didn't want them to hear those words until absolutely necessary.

Your daughter is only 6. My first thought was to tell her - MS is what makes it hard for me to ___ (fill in the blank) and leave it at that...if possible. If you keep answers short and simple she will probably go OKAY and be on her merry way. I believe in short and simple until she is older and wants to know more.

Just some thoughts from someone who has raised 2 kids with this disease

Thanks snoop. That was exactly what I was looking for. Well, she has known for 2 yrs that my body is doing weird things, and she knows some days I have a harder time than others... just like she knows I stumble around in the mornings for a good half an hour before I regain some balance.

So she has seen what it is doing, and she can see how it effects me, but she was not understanding how the little hole in my spine is making my arm not work. So it was more of an anatomy lesson that she needed.

Guess my answers sufficed since she is hounding me to go to the library now. LOL

Tunnel Theory: The brain sends the signal to your leg to tell your leg to walk. So if we are the signal, like when we drive to the beach, then we go through the nerve tunnel. So if the tunnel gets a hole in it, then the water comes rushing in, and us (the signals) get flushed right out of that tunnel. Then we end up in the ocean swimming around an never make it to the leg where we were trying to go.

And that boys and girls is how my 6 yr old understands MS!

What a wonderful site Snoop, and one that I'm sure other parents and grandparents will find helpful for many years to come.

That said, I think it would be good to have a copy of it up in the stickies ... under Resources and Useful websites.... so it doesn't get lost, and where we can all find it easily in the future.


Edit: Have copied it up there.