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Old 08-13-2010, 04:40 PM #1
salukigirl salukigirl is offline
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Join Date: Aug 2010
Posts: 6
10 yr Member
salukigirl salukigirl is offline
Junior Member
 
Join Date: Aug 2010
Posts: 6
10 yr Member
Default Can't get Dx

First off I'm new....howdy. Well I have been dealing with this for close to a decade now. Starting at around age 17 I started having little 'episodes' where I would get extremely lightheaded, feel like I was about to throw up, half the time I would fall over (but sustain consciousness the entire time) while my vision went completely black. Then I would have to just wait it out until everything went away and I would sometimes have tremors afterwards but not always. Then after about 2 years of that (and being diagnosed as hypoglycemic even though my glucose levels were normal) they subsided.

Well recently they have come back, and full force. Now, in addition to everything before, after those spells I get a tingling sensation (especially if I bend my head forward while the episodes are happening) that starts at the back of my neck and wraps around my face then spreads throughout my body. After I will have tremors for, sometimes, days at a time. I also have started getting random bouts of ringing in my ears and every now and then my right eye goes blurry for hours at a time.

I went to an ophthalmologist who told me these were seizures and was referred to a neurologist. So at my first appt. he did all the tests like "walk on your heels" and "now walk on your toes" and pushing my arms down while I pressed up against him etc... and said my motor skills looked okay. Sent me to get an MRI (without contrast dye) and a CT with the dye. He did not mention any lesions in the MRI but noted a nodule on my thyroid found during the CT scan but says this is probably not causing my symptoms.

Now he is sending me in to the hospital to get this Holter monitor on my heart and I just have this gut feeling that it's MS. Every symptom I have kind of points me in that direction. And I have brought it up to multiple doctors and what they always say is "well the symptoms are there but they're not in the right pattern". What does that even mean? I'm also not sure that you can really see lesions clearly without using dye during an MRI.

Right now typing this I am having a burning sensation through my back that just wont go away. I just want a freaking answer already. I feel like it's MS but no doc will listen to me. Any opinions or advice?
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tamiloo (08-15-2010)
 

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