Maryann, did they do the JCV blood test on you that people get when on Ty? Maybe you are not a responder to Ty. Two new oral meds will be out soon, maybe that might be something to think about.

What does your Neuro think about this down hill slide?
I hope the IVSM and taper kick in and that you feel better real soon.

MaryAnn, first and foremost, HUGS! I am sorry you are feeling so poorly.

Walgreens.com has a portable scooter very reasonably priced, and its light weight and easy to travel with. Pops apart and pops right into your trunk. Easy to care for, and half the price of most others.

I agree with the others that the JC virus scares me, and I would want to be tested if I was on TY and doing poorly. I hope you at least have that talk with your MD. Congrats on doing a full year btw!

Please know we are here, even if just to hug you or listen.

First, I wanted to offer you hugs. I'm sorry you are feeling so poorly.

Second, I do not want you to get frustrated with recovering function after a flare. It can take time. I was really in a bad way for a couple of years. It took pulsed steroids every 3 or 4 months and the right balance of Baclofen to find my way back to "better". I'm not "normal", but way better than I was. Since I've been stable like this for a couple of years, I guess this is my new normal.

Finally, do not underestimate the toll that stress and upset can take on your MS. You have a lot of stress and worry right now and that can really do a number on you. I think the yoga is a wonderful idea for that. You really need to take good care of you right now so that you are able to help your hubby.

You guys are the greatest!

Sally, they are monitoring my bloodwork closely. My home health nurse is going to contact my neuro next week to give him her report. Then, he will contact me with further instructions.

The TY was holding me in a steady place until this last flare. Stress with my DH's cancer and the heat I'm sure are what caused the downhill slide.

Thank you about the information on the Jazzy chair. I am definitely going to look right into it, plus the one sold through Walgreens. Thanks, I never thought WG would carry any type of scooter or chair!

I'm also going to contact the medical supply company where I bought my last Rollator and forearm crutches to see if they have what I want and how much Medicare will cover.

As an aside, Arnie has been on 25 mg of Sutent for 11 days now. His side effects so far are minimal. We have an appointment Sept 1 with his oncologist at UVA. Please keep him in your thoughts and prayers.

Monty has been a wonder dog lately. He can sense when something is wrong with me. He does everything I ask and more. I don't know what we would do without him.

Hugs to all of you, my friends!

I am so glad you are monitoring your bloodwork closely. I hope and pray that Arnie keeps holding his own and somehow beats this thing. I also pray that you find the strength to get through the stress without MS biting you in the butt.

((((((Maryann, Arnie & Monty))))))