[legzzalot]

So I followed up with pcp today who sent me thyroid ultrasound and ordered more bloodwork, so tomorrow I have bloodwork, friday I have TY infusion, Monday is the Ortho follow up.

pcp and neuro have signed off for ortho to do vertebroplasty procedure in all of the broken bones. I refused to go back on any crazy people pills, as they all made me crazy.

The next appt with pcp is next month where he has booked a whole hour and would like to have a phone conference with neuro because he realizes I am ready to stop taking all meds and call it a day. He agrees I should not be on medication to counteract other medications, but he does not want me to stop them all. In fact he wrote me more prescriptions while I was there... 5 minutes after telling me I ma on too many meds!

Sometime in the next month before going back I am supposed to follow up with the new endo (already determined we do not like his office), follow up with ortho, have lumbar MRI and bone density scan done AND have the vertebroplasty done.

Lets see, did I miss anything? Oh yeah we got the labs back form last time and yes, it was another Ty induced UTI. He wanted to do cortisone shots in my hip to stop the swelling... but the neuro says NO STEROIDS with the ty. So I am pretty much on my own with that one...

I am so tired of being poked and prodded and xrayed and mri'd and infused and touched and.... you know I am just tired. And I am grumpy. But I just give up. I am quitting MS. I tried it for 2 yrs, I have decided I just don't like it, it's not for me. I think i would like to send it back

[Dejibo]

did you keep the receipt? we have a strict no receipt no return policy ya know.

[Erin524]

and dont forget, if the box is opened and you've used it, they might not take it back.

[Dejibo]

did you receive this as a gift? or purchase it for your own enjoyment?

[Erin524]

Can we start a class action lawsuit against the manufacturer?

[legzzalot]

LOL. I wonder if there is a customer service rep I speak to. I think my MS is malfunctioning. it's defective!

[karousel]

Oh sure so you think it's okay to just quit?!? Fine - then I quit too!!! We can all quit and be a bunch of quitters.

[legzzalot]

You know all joking aside, I don't think I have ever felt so absolutely defeated by life as I do right now. The doctors are scartching their heads over the Thyroid going crazy again, yet a google serach for the cocurrenece of Graves Disease and MS tell me that one of the main triggers of Graves Disease is immune supression therapy most commonly Beta Interferon.

Each doctor is telling me I am on too many meds, yet they keep writing prescriptions. Been fighting with SSDI idiots since june of 09 and still not getting anywhere with them.

The bones in my back keep breaking form the sheer pressure of my joints swelling in my spine but they don't know what exactly is causing the inflammation.

We know Ty causes inflammation... yet my infusion is friday, but this may very well be the thing that has set my thyroid off. This may also be the reason for the brittle bones. BUT, it's the only drug in the last two years that has done anything to slow the progression of MS.

My hip would be an easy fix with cortisone shots and PT, but I cannot have either of them. Again we go back to the Ty... no steroids allowed. And the broken bones in my back pretty much make physical therapy impossible.

I am at a crossroads and I am stuck. Do I stop the Ty and just let the MS take over and accept defeat or do I stay on the Ty and stave off the MS, and watch the rest of my body fail?

I know that with everything going on depression and anxiety are natural. I know that stress triggers manic episodes. But I also know that there is not a mood stabilizer on the market that is going to make this better, so I am not willing to start anymore meds. I will find ways to deal with the emotional side of things but it would be so much easier if I could see some kind of improvement in the physical side.

I just don't know. My doctors all seem to be idiots lately.

[SallyC]

No words, just a big healing hug..

[Lady]

Leggs, I think you have to make up your own mind what YOU want to do? One of the choices may be the right door that you open. Think about it, write down, the pro and con's. Then open that door.

The Vertebroplasty procedure, is that bone fusion, or surgery for your neck, or is it radio frequency pulses?

Good luck making a decision, it's hard.