[legzzalot]

So I followed up with pcp today who sent me thyroid ultrasound and ordered more bloodwork, so tomorrow I have bloodwork, friday I have TY infusion, Monday is the Ortho follow up.

pcp and neuro have signed off for ortho to do vertebroplasty procedure in all of the broken bones. I refused to go back on any crazy people pills, as they all made me crazy.

The next appt with pcp is next month where he has booked a whole hour and would like to have a phone conference with neuro because he realizes I am ready to stop taking all meds and call it a day. He agrees I should not be on medication to counteract other medications, but he does not want me to stop them all. In fact he wrote me more prescriptions while I was there... 5 minutes after telling me I ma on too many meds!

Sometime in the next month before going back I am supposed to follow up with the new endo (already determined we do not like his office), follow up with ortho, have lumbar MRI and bone density scan done AND have the vertebroplasty done.

Lets see, did I miss anything? Oh yeah we got the labs back form last time and yes, it was another Ty induced UTI. He wanted to do cortisone shots in my hip to stop the swelling... but the neuro says NO STEROIDS with the ty. So I am pretty much on my own with that one...

I am so tired of being poked and prodded and xrayed and mri'd and infused and touched and.... you know I am just tired. And I am grumpy. But I just give up. I am quitting MS. I tried it for 2 yrs, I have decided I just don't like it, it's not for me. I think i would like to send it back

[Dejibo]

did you keep the receipt? we have a strict no receipt no return policy ya know.

[Erin524]

and dont forget, if the box is opened and you've used it, they might not take it back.

[Dejibo]

did you receive this as a gift? or purchase it for your own enjoyment?

[Erin524]

Can we start a class action lawsuit against the manufacturer?

[legzzalot]

LOL. I wonder if there is a customer service rep I speak to. I think my MS is malfunctioning. it's defective!

[Becca44]

Originally Posted by legzzalot

[MS]...I have decided I just don't like it, it's not for me. I think i would like to send it back

Well I'll be da*ned. Why didn't I think of that???

[Mariel]

Inflammation! This word keeps coming up in what you write, Leggs. I too have some inflammation in my spine now, which is a result of breaking my kneecap, having my leg in a cast for a long time, and now having distortion of the spine from all of that. So my back hurts. Spasms unexpectedly, very painful, hardly can walk.

What am I doing for it? Well, one thing, trying to fight inflammation. For me, Chinese herbs are a good inflammation fighter, particularly one which "cools' the body. I got these from an acupuncturist. I couldn't say if you need "cooling", but I'd need it if I had
all the chaos going on in the spine that you have, plus the other chaos in the thyroid and the nervous system.

I was afraid to take herbs, as I have not always reacted well to them. I am doing well with this coolant called Flex (Heal) by Evergreen herbs, from the acupuncturist.

Also I am doing acupuncture itself. I don't know if you can afford this...it might be worth a try. I found it wonderful 30 years ago and now I am at it again out of desperation. Also PT is gradually helping me with my spine.

But I think your spinal problem sounds different from mine, and seems to be a result of
too many meds. I wonder which ones to stop?

Because I have another disease Porphyria which makes me chemically sensitive, I have had to rely on non-drug means, for the most part, to help with MS symptoms. The Swank diet has been my mainstay for around 26 years now, but I go far beyond that when I can with the diet, going organic, being sure to have some raw food daily (not ALL raw, which is too hard to do, especially with kids), and especially getting organic
protein. I can't do that now because I am in a "facility" and I know the non-organic diet is NOT helping the inflammation. I will fly the coop as soon as I can no matter how hard, just to cook better food.

You have so many things to adjust to and think about that none of us can give a comprehensive answer. However, how about trying a couple of things: anti-inflammation herbs and foods; Swank low fat diet, low salt too to cool your overheated body. Naturopath and/or acupuncturist if you can afford these.

I would love to take back my three diseases to the store, too.

[Erin524]

The MS store wont take my MS (slightly used) back.

I wonder if I can sell it on eBay?? I dont think I'll charge a lot of money for it.

$5 or best offer?