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Old 09-15-2010, 11:18 AM #1
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the steroids dont work immediately.

When I did oral steroids back in 2007, I didnt notice improvement until a week after I finished the oral pred. (had the oral pred because I had bad vertigo that kept sneaking up on me and knocking me to the floor)

I had IVSM last summer for double vision, that didnt help immediately either...took several weeks to notice improvement.

Also had oral pred last fall that did nothing, and IVSM and an oral pred taper earlier this May for near full body numbness, problems with moving my right side, vertigo and the worst spasticity that I've ever had. I'm still numb, still get the dizzies, but the spasticity has improved. I dont know if the 'roids I took for that helped or not, since I still dont feel good. Only thing that got better was the spasticity. I'm not popping baclofen like Tic-Tacs anymore. (at least not this week...the spasticity comes and goes)
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Old 09-15-2010, 11:28 AM #2
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Thanks for the response Erin!

So I should give it about another week to see if the roids kick in huh?

So are symptoms that improve coming out of a flare, but are still present almost everyday, just the sign of what permanent was done from the flare?

They said if I am still experiencing the back muscle stiffness/soreness a week after the prednisone that I would have to be put on an anti-spasmatic (which I am trying to avoid I DO NOT like prescription drugs AT ALL).

I really hope my body can get itself back in check cuz I feel like

A. This disease is literally eating me alive
B. I am a danger to my own self. (per my coordination being so jacked up)
C. I am falling apart! lol

Thanks for your response!
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Old 09-15-2010, 11:50 AM #3
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Just give it some time. Sometimes improvements happen gradually.

I dont like taking medicines either, but I love the baclofen (an antispasmodic) that I take for my spasticity. Much better to swallow a couple of baclofens than having the MS make my legs try to kick me in the butt while I'm sleeping.

I'm still waiting to see if my latest flare is going to let up and leave me alone for a few months.
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Old 09-15-2010, 11:58 AM #4
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I believe baclofen is what they plan on putting me on if need be it...

sooooo

is baclofen something I can take before I go to bed if I have been really active that day and know my muscles are going to turn on when they should be turned off for the night? and when my back gets really stiff and uncomfortable would I just be able to pop the pill to ease my muscles?

or is it one of those drugs that I have to take everyday regardless if I am in pain or not?

thanks!
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