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09-18-2010, 02:27 PM
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Elder
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And I'm going back on.
I was experiencing really bad indigestion again. I read the package insert, and it IS a side effect (I'll have to let my neuro know...he didn't recall this being a side effect when I complained about it). I went off of the drug on Tuesday. Within 12 hours I was indigestion-free...I felt great, and was sleeping through the night again (the burning was waking me up during the night). But by Friday, my DH noticed I wasn't walking very well. And this morning, I was doing awful. I began taking it again this afternoon. I'm going to call my neuro's nurse to ask for suggestions as to what to do about the indigestion. But I'm staying with Ampyra. I've proven to myself that it definitely works for me.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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09-19-2010, 01:03 AM
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Senior Member
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Good luck Deb, I hope it works for you more each day. I hope you get something to take away the burning tummy pains. Do you take it with food or without? I don't know anything about the drug. Good luck
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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09-19-2010, 07:14 AM
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Elder
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why is it that our MDs dont know the stuff they are putting us on? I dont mean they have to be a walking encylopedia, but they must be willing to look stuff up, or admit that it may be a side effect and get back to us. I had an MD that was completely blind to the stuff I was on. When I crabbed about pancreatitis they said NO WAY was it copaxone. it just wasnt possible. its one of the first side effects listed!
Its best to be your own advocate and look up the stuff you are taking. Well done Deb
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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09-19-2010, 09:24 AM
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Grand Magnate
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We have to be our own advocates and believe sometimes we do know more as a
MS victim than our doctors.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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09-19-2010, 11:32 AM
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Elder
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I am considering calling his nurse tomorrow to address that and other things. When I see him I'll bring the insert.
Its kind of weird that he didn't know this, since he ran clinical trials on the drug...oh well.  Walking still hasn't improved since I started back on it but the tummy ache came right back. Grrr.
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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09-19-2010, 12:40 PM
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Grand Magnate
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Have you tried prilosec OTC? You have to take it first thing in the morning about an hour before you eat. I take nexium every morning which is a bit more effective than prilosec.
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| "Thanks for this!" says: | SallyC (09-19-2010) |
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