Maybe we should all put a video on YouTube asking what the long term prognosis is with the people who have had it done.

If I had it done.....and it worked.....you better believe I'd be posting 1, 2, 3, 4, etc. month follow up videos to prove it to the doubters. Makes me wonder why nobody has bothered to put up a post-op video....and not just one the following day.

I mentioned ccsvi to my new neuro #4 or 5 now and his reply was along the lines of farse. I said nooo..(as my high opinion of him was about to fall) "what about all the utube videos? they're not faking". He said if it makies me happy to keep looking into it.

I mentioned it to a world known surgeon while I was in NY over summer and he said if I need it - don't hesitate. Simple procedure said he. His walls are covered with awards and magazines with him on them though so simple to him may not be to others.

What do you's think about the dissolvable stents coming out in 3 yrs?
I don't see how people could relapse unless the vein was just stretched for quick fix and reshrunk. Think about it.
I'd certainly roll the dice with metal stent tomorrow if I knew I'd stop progressing but that's me.