I just read that it will be available in early Oct. and most are guessing the price will be $30,000 a year. That comes out to $84.26 PER pill!!!!!! Better not drop any on the floor or lose any!

I'm sure a lot of people will try it. As for me, I'll stay with Tysabri as it's been the only thing that's helped at all, and without side effects. I don't tolerate interferons at all, and with Copaxone, I might as well have been injecting expensive water. Very expensive water .

Will call Biogen when I get to it and ask if I can take it with Ty if I chose.

I am confused regarding your comment about taking the new drug with tysabri. I seriously doubt that this drug is supposed to be combined with another MS treatment.

Nope, no way, heck it's not for spms anyway, only rrms. Lowering the wbc's is NOT a good idea for those who are prone to infections. Jim is one of those. Oh well, hope it works for those who try it.

Since it lowers the WBC, it will be not be allowed with Tysabri. Same as any type of Chemo.

It is being clinically tested on PPMSers at Johns Hopkins, my neuro is doing trial. I've always wanted to try it (maybe it's the old name - Fingolimod I like) My ex old neuro who moved away was in charge of trial until he moved and tried to get me in it. Now my new neuro is in charge but rejected me quickly (I am 6.5, you had to be 6.0. I really liked my ex-neuro, he was out of the box if you know what I mean. The new one is younger and a rule follower.

are you saying one of these is chemotherapy?

i'm not big on trying anything new. i'd like to sit tight and see how it affects those that do try it.

i just saw my neuro and we talked about it. i'm stable on C. i'm over 60 and i havn't had any flares. so i'm going to leave well enuf alone.

thanks for the info and links in these posts.

My neuro wanted to immediatly throw me on this pill, and I said "wait!" I want to see how others do first. I am very sensitive to meds, and have failed off of them all. I dont want to go on this pill and find out that six months later folks have kidney damage or melanomas, or cant recover from the drop in White cells. I think people who sign up for clinical trials are brave, and courageous. I simply am a chicken. I want to know what I am taking is safe, wont kill me six months down the road, and is going to work for me, as oppposed to just giving me the side effects and no benefit.

I still say its criminal to charge this much for this pill. shame on big pharma. shame.