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Gilenya -- fingolimod

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Old 09-23-2010, 10:34 PM #1
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Quote:
Originally Posted by EddieF View Post
Just spoke with someone about it. It blocks/reduces the white cells that make up your immune system by 70-80%. ..............
If that's correct Eddie, then reducing our white cell count by 70-80% sounds pretty scary to me.

White cells are our body's main means of fighting infection, and with a reduction that large, the medication would be inducing leukemia in the person taking it, leaving them open to potentially life threatening infections.

For me, the negatives for this medication are piling up fast.
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Old 09-24-2010, 07:14 AM #2
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I heard its approved for dispensing on OCt 4. The cost is to be determined by the research value of the drug. strong rumors have it that it will be about 30k per year.

I will not be taking this med, or probably any other DMD in the short term. After my break from Copaxone I am feeling so much better. I just cant/wont go backwards to the land of resting in bed most of the day. If the disease takes me, so be it.

I pray all those who chose it will be out dancing in the streets.
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