Just saw my neuro last Thursday and of course he would like to see me on a DMD. He was actually amazed at how well I was doing since I haven't been on any DMD's since 2004. He recommended Tysabri or Gilenya, which are both viable options for those of us who cannot take interferons.

I went home and did some research. I personally can't see myself taking either one in the near future. Gilenya sounds wonderful but you should've heard my neuro rattle off the side effects: heart, lung, eye toxicity, elevated liver enzymes, melanoma, macular edema, shortness of breath, bronchitis, bradycardia, etc. Think I'm going to take my chances a bit longer and wait to see the long term studies on Gilenya.

I too am off all DMDs and simply cannot see myself jumping on any of the choices left to me. Scary to be on them, Scary to not be on them.