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Old 09-25-2010, 11:46 PM #11
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Years ago I brought my unused Avonex to the Neuro, and then three + years later the Copaxone found a home.

My MS specialist said he had people in the clinic who could use the med (Avonex) and to bring it in at the next appointment, that one was eons ago.

Do you realize what just one needle filled with Avonex costs? Wow! 4 needles per box at what cost now? You could buy a new car every year for that kind of money spent yearly on these drugs.
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Old 09-26-2010, 07:23 AM #12
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I delivered the meds to my nurse from the local MD. I did NOT want to be the direct one to hand over the meds. I too like Erin worry that if this girl has the IPIR she will blame the way I stored the meds. They arrived cold, and immediatly went into the fridge and havent come out. When I used it, I would pull out ONE needle at a time. I double checked the packaging and exp date before I turned it over. Now, if something goes wrong, she will have to call shared solutions or the nurse, and not me. isnt that silly? I too was happy to pass it on, instead of throwing out more than 12k worth of drugs. Thats just silly. This girl is paying $340 per month or 10% of what the drug costs as a co pay! eeeek!

Thanks for all the support.
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Old 10-02-2010, 08:07 PM #13
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I was on C for 3 years. Have been off for about 8 years. I stopped because of the tissue damage at the injection sites. I'm not sure there is any difference in my MS on or off Copaxone.
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Old 10-02-2010, 09:20 PM #14
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I'm in the "I quit C" club!

Eating healthy, exercising and sleeping 7-8 hours a night is greater than $2k~ a month stabbing myself at a 30% chance of success.

Instead, I'll eat a diet aimed at reducing inflammation. Doctors don't like healthy eating and lifestyle changes like this by the way, it's not profitable for them!



I'm sooooooooooo relieved and happy that you're feeling much better off Copaxone and don't regret your feeling. I'm also so happy that YOU made this decision, and went with your gut feeling. Way to go Dej, you rule!
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2004 to present - Trigeminal Neuralgia
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Old 10-03-2010, 07:34 AM #15
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My MD is pushing the new pill that is coming out, and I will be refusing it as well. I feel so much better since becoming a quitter. I dont feel like pre MS, but I certainly dont feel like the drugged up zombie I had become. My stomach still hasnt recovered.
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Old 10-03-2010, 08:55 AM #16
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Quote:
Originally Posted by dmplaura View Post
Eating healthy, exercising and sleeping 7-8 hours a night is greater than $2k~ a month stabbing myself at a 30% chance of success.

Instead, I'll eat a diet aimed at reducing inflammation. Doctors don't like healthy eating and lifestyle changes like this by the way, it's not profitable for them!
Amen! Even if you don't have a condition like MS this lifestyle can only show improvement.

Since I have been eating healthier, drink only purified water, no HFCS or sugar, no poultry or beef that has antibiotics or hormones added the difference is night and day. Of course, I'm taking my LDN religiously and my vitamin supplements.

I realize while this is working great for me it might not produce the same results for everyone and I respect that. If some folks have found that a DMD makes them feel better and can afford it then more power to them. For me, this seems to be the magic ticket.
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