Can someone tell me why I could not walk Sat/Sun mornings? I know that on Friday I over did it beyond what I have done this entire past year- with everything possible. Then Saturday afternoon (not feeling well at all with nausea/vertigo/walking really funny)- sat out in *87 temperature for two football games... for a few hours. Then drove in a car for 2 hours. Sunday repeated the same process.

Both days my legs were so stiff beyond what I ever have experienced. Took meds and went back to bed both mornings until I was physically able to walk- which was 2 hours later both days.

Fatigue: So not normal.

Last night: Left message for Neurologist to call me back about the walking problem.

Today: Neurologist never called me back.

What do I do? Any suggestions? I feel like I'm going nuts. Really. Anymore- I think I need to be sent to the mental ward- and that they are going to tell me it is REALLY in my head- again!!! For the last time. And then I will literally go nuts.



Coffeegirl

Get your testosterone level checked. Don't ask me why and say you're a girl, just do it.

You answered your own question, CG, You did too much and your body is rebelling and taking time to heal. Unless this is an exacerbation, there is little your Neuro can do for you.

Rest and give it a little time.

"sat out in *87 temperature for two football games... for a few hours."

That alone wouldn`t have been a good plan for me.

I'm not a doctor, and I don't play one on TV, but...If I sat out in the sun longer then, oh, 5 minutes, they'd be pouring me into the car for the drive home. Fatigue, noodle-legs, the whole nine yards...How are you feeling after cooling down and resting?

Yep....

If I sat for two hours in high temperatures, and then had a long car drive I would have trouble walking too. Best way I can describe that feeling - like the legs are really stiff and yet made of jelly all at the same time - or perhaps even belong to someone else....because they weigh a ton and I wouldn't have control over what they did.

The question is, how did you feel after you had cooled down, and had a rest?

So sorry you are going through all this cr*p - I think limboland would be much worse than being able to tackle this Monster head on.

Hugs

Lyn

When I went home I turned the airconditioner on, ceiling fan on and sat for a while til I cooled down. Took a Valium. After sitting for 30-45 minutes I started to feel better. Then I took a lukewarm shower. I'm finding out that hot showers are NOT a good thing to do anymore. That is another thing I'm discovering.... Why is that also a bad thing? Is that another trigger? Is this all in my head???

I do lukewarm showers, too. Anything that raises my body temp is not good.

It's hard to not do the things you used to enjoy and just be a spectator when you're used to participating. It's something we've all had to come to terms with and adjust to the best we can.

Some of us (me included) still attempt to do some things we know will induce symptoms. Sometimes I think we convince ourselves that at some point we'll be able to do these things again. Wishful thinking!

Hot showers are not good as they relax your muscles, etc. even more. You have to be very careful about that. I do lukewarm showers and that is fine. My muscles are relaxed already as are other peoples muscles who have NMD. Some people it doesn't bother and others have to be careful. You don't want to end up falling for example. It's also hard to feel how warm the water is at times. But it is doable.

It's the same when I soak my feet in Epsom Salt. Lukewarm water, not hot.

Sounds like you overdid it. Take it easy...