Reply
 
Thread Tools Display Modes
Old 08-31-2006, 01:03 PM #1
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Quote:
Originally Posted by wannabe View Post
Just a link to Paul's website would have been sufficient anyway to share all his good information here.
I agree. That is a good solution, in this instance.

Quote:
Originally Posted by wannabe View Post
This didn't even have to become an issue unless someone is TRYING to take credit for work they didn't write.
I don't think it was a matter of Cherie "TRYING to take credit" . . . but more of a situation where Cherie just didn't percieve the same value (as you), in tracking "whom" to credit with writing/providing this information.

Continuing to accuse Cherie of purposely trying to mislead people is probably just adding fueling the fire though (even if it is true). The goal is to get resolution, in my mind, not assign blame.

I doubt very much that Paul didn't do the same thing; copy from other sites, to some extent. We all do that . . . as absolutely everything "factual" about this disease is taken from "somewhere". Otherwise, it is just our opinion . . . and even opinions are formed from information we have gleaned from reading something.

Creative opinions are often theoretically afforded copyright protection too, so I don't really see how we can be held accountible for defining where we heard everything we write. That would mean something as simple as recommending a certain off-label drug, or providing a list of side-effects about that drug, would "officially" be stealing proprietory information. That's a lot of drama, jsut to share information for the benefit of others.

Quote:
Originally Posted by wannabe View Post
I understand that it sometimes seems unfair not to be able to share information if we can't provide the source.
I feel this is a WASTE, not "unfair".

My notes include details derived from many different sources of information - and is written it into into a more "comprehensive" resource. This includes much of my own wording (and opinion), but in effect, I guess that information should not be posted on a board (if we are to follow copyright to the letter) . . . ?

With the advent of the internet, prosecution for not following copywrite law is almost unheard of (even considered petty by many courts).

Quote:
Originally Posted by wannabe View Post
I just think the authors and publishers deserve the recognition and that is the overriding concern here.
I agree, in principle, particularly if the entire source of information is copied verbatim. That requires some discipline/effort (if drawing from old notes), but where practical, it is most definitely the "fair" thing to do. Hence, I have made it a habit of attaching a link, where possible.

Cherie
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 08-31-2006, 03:02 PM #2
wannabe wannabe is offline
Member
 
Join Date: Aug 2006
Location: in MS land
Posts: 186
15 yr Member
wannabe wannabe is offline
Member
 
Join Date: Aug 2006
Location: in MS land
Posts: 186
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
I don't think it was a matter of Cherie "TRYING to take credit" . . . but more of a situation where Cherie just didn't percieve the same value (as you), in tracking "whom" to credit with writing/providing this information.

Continuing to accuse Cherie of purposely trying to mislead people is probably just adding fueling the fire though (even if it is true). The goal is to get resolution, in my mind, not assign blame.
Quote:
Originally Posted by Cherie View Post
...and "Understanding MS" was edited in length considerably by me and contains very few original intact sentences. Nothing for which I took credit for.
lady express -

This is the phrase that I have objected to. Someone knows if they wrote something or not. This statement is in fact absolutely not true and I think misleading people into believing you wrote it when you didn't is a VERY big issue.

I agree before this statement that this was probably an innocent error of not offering a source. And I treated it as such. But this line leads me to believe that there was intention. I know what I write and what I haven't. It sticks in your mind if you spent time and energy writing something. The language itself will give me clues if I've truly forgotten. For example, I would know that I didn't write this Paul Jones article because I never say the word: "crikey".

I would have thought that if someone was innocently making mistakes and this was brought to their attention, they would be contrite and really be eager to correct the misperceptions and errors in not giving credit. And would appreciate that someone had pointed this out to them before they got into big trouble or was fined or sued. I haven't seen that and that is unfortunate.

I respect that you see this differently though. Hopefully we can all learn together to make sure that people DO get credit for their work.
wannabe is offline   Reply With QuoteReply With Quote
Old 08-31-2006, 10:19 PM #3
christine bauman christine bauman is offline
Junior Member
 
Join Date: Aug 2006
Posts: 23
15 yr Member
christine bauman christine bauman is offline
Junior Member
 
Join Date: Aug 2006
Posts: 23
15 yr Member
Default

Hi everyone, we are in this fight against MS TOGETHER to support each other; together we stand divided we fall. Let us support each other!!!! MS is enough of a battle to deal with. Love you ALL!!!!!!
christine bauman is offline   Reply With QuoteReply With Quote
Old 08-31-2006, 11:19 PM #4
Bobbi's Avatar
Bobbi Bobbi is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Bobbi Bobbi is offline
Senior Member
Bobbi's Avatar
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Default

Quote:
Originally Posted by christine bauman View Post
Hi everyone, we are in this fight against MS TOGETHER to support each other; together we stand divided we fall. Let us support each other!!!! MS is enough of a battle to deal with. Love you ALL!!!!!!
Yes, and, also people whom are new to trying to understanding their testing procedures and the terms and how to cope if dx is made are also reading and wanting to know more.

Can't this thread just be let go? It started on a high note and now... if I found myself faced at the point I was a couple of years ago: I'd be leaving here as fast as possible. No one wants to be ensnared in a firestorm while trying to find info. and support.

Who wrote what? I dunno. But the info that was initially shared was helpful in understanding. I'm sorry that it's gone, when no one has still offered info. about whom actually authored it. Maybe, as I mentioned, it is Public Domain, which actually means that attribution is not mandated.

If I were "new" to being sent for testing, I wouldn't have a part of what's going on here and likely find myself feeling alone.

Can everyone please move on?
Bobbi is offline   Reply With QuoteReply With Quote
Old 09-02-2006, 10:30 PM #5
Howard Howard is offline
New Member
 
Join Date: Aug 2006
Location: A pineapple under the sea
Posts: 4
15 yr Member
Howard Howard is offline
New Member
 
Join Date: Aug 2006
Location: A pineapple under the sea
Posts: 4
15 yr Member
Cool

Whooooooooooooo lives in a pineapple under the sea.....
oh, HI Bobbi. Pay no atttention to me. I never discuss MS.....SpongeBob SquarePants!!!
Howard is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
agate (04-27-2013)
Old 09-03-2006, 02:35 AM #6
Bobbi's Avatar
Bobbi Bobbi is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Bobbi Bobbi is offline
Senior Member
Bobbi's Avatar
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Default

Kinda hard not to pay attention to you, or anyone whom makes time and takes the effort to post . For me, posting is an all out effort. So I just imagine it may be for others too.
Bobbi is offline   Reply With QuoteReply With Quote
Old 09-03-2006, 11:42 AM #7
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,021
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,021
15 yr Member
Default

Bobbi, that was my point exactly when I wrote (in this thread, above):

Quote:
Many people with MS are starting up their own Webpages and/or message boards. I do feel strongly that our words, which some of us find difficult to think up and type, should be recognized as ours.
I haven't had a reply from the Paul Jones Website yet but I did have one from the NMSS Website developer, who says that when quoting material on the NMSS Website, it is sufficient to give credit to the NMSS Website and give the page URL.
agate is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 02:45 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.