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Hi Daisy - I chart my sleep patterns daily as it clearly shows the progression of a flare up for me.
I begin with sleeping normally from 10pm to 5/6am. Slowly the pattern will start to change. It begins with not being able to sleep for more than 3-4 hours. Ex. I go to bed at 10pm but awaken at 12:30 to 2am. Then I can not get back to sleep. Naps start to increase from once a day to twice a day. Length of naps start to increase. I'm in full swing of a flare up headed to the peak of fatigue which can take about 4-6 weeks to get to the peak - new symptom arrives - and then I start heading down towards normal life style again. At my peak I sleep almost 18-20 hours a day barely struggling through the 4 hours of awakeness. Keeping the daily journal visually, helps me stay hopeful and encouraging as I can watch the progression and then see when it starts to decline-aw sweet relief is on the way as my fatigue begins to decline and I start to awaken to life again. The more clearly you can follow or understand how this disease affects your body system can help ease anxiety/depression etc. For me it helped keep depression, sadness etc away because I could "see" and "know" how my days were being numbered. Like a menstrual period...each woman is different and you have to know your body and how this disease affects your body system. ![]() ![]() |
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"Thanks for this!" says: | daisy.girl (11-08-2010), SallyC (11-04-2010) |
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