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#1 | ||
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Member
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Hi Daisy - I chart my sleep patterns daily as it clearly shows the progression of a flare up for me.
I begin with sleeping normally from 10pm to 5/6am. Slowly the pattern will start to change. It begins with not being able to sleep for more than 3-4 hours. Ex. I go to bed at 10pm but awaken at 12:30 to 2am. Then I can not get back to sleep. Naps start to increase from once a day to twice a day. Length of naps start to increase. I'm in full swing of a flare up headed to the peak of fatigue which can take about 4-6 weeks to get to the peak - new symptom arrives - and then I start heading down towards normal life style again. At my peak I sleep almost 18-20 hours a day barely struggling through the 4 hours of awakeness. Keeping the daily journal visually, helps me stay hopeful and encouraging as I can watch the progression and then see when it starts to decline-aw sweet relief is on the way as my fatigue begins to decline and I start to awaken to life again. The more clearly you can follow or understand how this disease affects your body system can help ease anxiety/depression etc. For me it helped keep depression, sadness etc away because I could "see" and "know" how my days were being numbered. Like a menstrual period...each woman is different and you have to know your body and how this disease affects your body system. ![]() ![]() |
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"Thanks for this!" says: | daisy.girl (11-08-2010), SallyC (11-04-2010) |
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#2 | ||
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Member
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I really wish I could 'chart' mine.....To me, it seems to have no rhyme or reason.....or I am just too pre-occupied to see the pattern.
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#3 | |||
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Grand Magnate
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i've had trouble sleeping for many yrs. i've been dx'd with MS for 7 yrs but had it long before dx.
i also have a lot of pain and they apparently can tell that on a sleep study too. i now take ambien and that's helped a lot but it's not perfect. since we also have to deal with MS fatigue i guess sleeping can be multifaceted. i do know that if i don't get enuf sleep i don't feel well. i hope you get some relief soon.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | daisy.girl (11-08-2010), TRESA (11-08-2010) |
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#4 | ||
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Member
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It took me a very long time to get my cycles figured out - years actually.
But I have definite flare-up cycles which begin with bleeding inflammation of the bowels (so I KNOW I am headed into one) and the inflammation swells in the brain, heart,lungs and fatigue escalates up to a ten...VOILA...new symptoms....and then slowly down to earth again. Mine last about 8 weeks each time - then 6-8 good weeks and BOOM-it starts all over again. And, then I have Myasthenia Gravis on top of all this so I am HYPER-VIGILANT about my stress, diet, activities - loath being so fatigued where all I can do is stare out a window. lol I feel like I'm stuck in anasthesia and cant every "wake" up. UGH |
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"Thanks for this!" says: | daisy.girl (11-08-2010) |
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