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#1 | |||
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Senior Member
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Hi my friends,
FYI: I just wanted to let you all know that my left jugular in blocked and I am going to Albany on Dec. 8th to get the Catheter Venogram to get unblocked. Otherwise known as the CCSVI procedure for MS. All my veins will be tested while I am on the table, like the Azygous vein in the chest. During the procedure, my Dr. will balloon them open or stent if needed. We had a few days of vacation and I got the Flu and a UTI. I am on Anti-b's for the bacterial ear infection and UTI. My MS is trying to relapse. It doesn't like the fever or infection. Always something! ![]()
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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"Thanks for this!" says: | Aarcyn (10-29-2010), debw (10-29-2010), Dejibo (10-29-2010), dmplaura (10-29-2010), EddieF (10-29-2010), ewizabeth (10-30-2010), hollym (10-29-2010), jeep4wd (11-01-2010), Jodylee (10-31-2010), Kitt (10-29-2010), missj (10-29-2010), mrsD (10-29-2010), NurseNancy (10-30-2010), SallyC (10-29-2010), SandyC (10-30-2010), Twinkletoes (10-29-2010), Victor H (10-29-2010) |
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#2 | |||
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Senior Member
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Awwww......there always has to be some bad news with the good in our lives with MS.
![]() ![]() But.....Congratulations on being brave enough to give the Liberation a try!!! I sure hope and pray you'll see a BIG change for the better!! Please let us know how you make out with before and after reports. It sounds hopeful, but I wonder if it would be successful with spms? Good luck!! ![]()
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_____________________________________________ .....Judy SPMS -- FIBROMYALGIA -- Ouch! and Ouch! . |
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#3 | |||
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Magnate
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Lady, that's awesome you're being seen for CCSVI and getting the procedure done. I hope it has positive effects for you!
I hope you feel better with everything else - MS, UTI, fever... you poor thing! ![]() ![]()
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2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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#4 | |||
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Member
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Good luck Lady
You sure deserve a break. I hope that all goes wel, and that it has a positive effect on your MS. Lyn |
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#5 | |||
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Elder
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congratulations and good luck. please come back with all the details for us.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#6 | |||
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Wisest Elder Ever
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Congratulations on being able to give this a try! I hope and pray it gives you the relief you're seeking. Please give us a follow-up report. We'll all be sitting on the edge of our seats waiting! I'm excited for you and can't wait for the results. You're in my prayers.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#7 | |||
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Senior Member
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Hey Lady. Feeling any better today?
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#8 | |||
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Junior Member
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Good news something that all of us are not used to hearing.I am watching you and someone in my family going to Albany for this!I will be updating everyone on her progress.Hope that this really works for you I really do....Jim
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#9 | |||
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Member
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best of luck on this! i have no idea what it's all about but now i will look!
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#10 | |||
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Senior Member
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Thank you for your well wishes.
No Cyn, I am not better yet. this bug is kicking my buttski. I just want to lay down and let the flu bug stop bugging me. I think the UTI is getting a bit better, but still uncomfortable. (sigh) I am still fighting, trying not to relapse. Why did I have to get sick and need steroids when I can't have them before the procedure? What kind of luck is hanging over my head? I am resting so much now. Before it hit I couldn't sleep, now that's all my body wants to do. I guess you have to be careful what you wish for, ya think? ![]() Thanks Jim, I pray your family member see great improvements. Some get it right away, some it takes times, up to six months. This is not a trial. It is the Liberation Procedure, with data collection to show the naysayers that this really helps so many people. It is in the early stages (two years). Many of us can't wait ten years for the NMSS and some clinical trials to agree. We know it works. Besides, who needs to have blocked jugulars? That's not normal even in a non-MS body. If it's broken, it needs to be fixed. ![]() Thanks Kajun, Wiz, Pud's friend, Nurse Nancy, Linda, Sally, Judy, Laura, Lynn, Dej, Kitty, Twink, Eddie, and all of you who read my thread and said thanks. You don't know how important your thoughts and well wishes mean to me. Thank you all.
__________________
LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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