Reply
 
Thread Tools Display Modes
Old 10-29-2010, 12:03 AM #1
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Arrow I am having the "Liberation Procedure"

Hi my friends,
FYI:

I just wanted to let you all know that my left jugular in blocked and I am going to Albany on Dec. 8th to get the Catheter Venogram to get unblocked. Otherwise known as the CCSVI procedure for MS.

All my veins will be tested while I am on the table, like the Azygous vein in the chest. During the procedure, my Dr. will balloon them open or stent if needed.

We had a few days of vacation and I got the Flu and a UTI. I am on Anti-b's for the bacterial ear infection and UTI. My MS is trying to relapse. It doesn't like the fever or infection. Always something!
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (10-29-2010), debw (10-29-2010), Dejibo (10-29-2010), dmplaura (10-29-2010), EddieF (10-29-2010), ewizabeth (10-30-2010), hollym (10-29-2010), jeep4wd (11-01-2010), Jodylee (10-31-2010), Kitt (10-29-2010), missj (10-29-2010), mrsD (10-29-2010), NurseNancy (10-30-2010), SallyC (10-29-2010), SandyC (10-30-2010), Twinkletoes (10-29-2010), Victor H (10-29-2010)
Old 10-29-2010, 03:20 AM #2
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default

Awwww......there always has to be some bad news with the good in our lives with MS. Hopefully the flu won't be too bad and the UTI will clear up soon. What a way to spend a vacation.

But.....Congratulations on being brave enough to give the Liberation a try!!! I sure hope and pray you'll see a BIG change for the better!! Please let us know how you make out with before and after reports. It sounds hopeful, but I wonder if it would be successful with spms? Good luck!!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (10-29-2010), SallyC (10-29-2010)
Old 10-29-2010, 06:57 AM #3
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Lady, that's awesome you're being seen for CCSVI and getting the procedure done. I hope it has positive effects for you!

I hope you feel better with everything else - MS, UTI, fever... you poor thing! Thinking of you.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (10-29-2010), SallyC (10-29-2010)
Old 10-29-2010, 07:29 AM #4
Lynn's Avatar
Lynn Lynn is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Default

Good luck Lady

You sure deserve a break. I hope that all goes wel, and that it has a positive effect on your MS.

Lyn
Lynn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (10-29-2010), SallyC (10-29-2010)
Old 10-29-2010, 07:46 AM #5
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

congratulations and good luck. please come back with all the details for us.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (10-29-2010), SallyC (10-29-2010)
Old 10-29-2010, 08:59 AM #6
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Congratulations on being able to give this a try! I hope and pray it gives you the relief you're seeking. Please give us a follow-up report. We'll all be sitting on the edge of our seats waiting! I'm excited for you and can't wait for the results. You're in my prayers.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (10-29-2010), SallyC (10-29-2010)
Old 10-31-2010, 12:08 PM #7
Aarcyn's Avatar
Aarcyn Aarcyn is offline
Senior Member
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Aarcyn Aarcyn is offline
Senior Member
Aarcyn's Avatar
 
Join Date: Jan 2008
Location: San Diego, CA
Posts: 1,776
15 yr Member
Default

Hey Lady. Feeling any better today?
Aarcyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-01-2010), SallyC (11-01-2010)
Old 11-01-2010, 02:26 AM #8
jeep4wd's Avatar
jeep4wd jeep4wd is offline
Junior Member
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
jeep4wd jeep4wd is offline
Junior Member
jeep4wd's Avatar
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
Default

Good news something that all of us are not used to hearing.I am watching you and someone in my family going to Albany for this!I will be updating everyone on her progress.Hope that this really works for you I really do....Jim
jeep4wd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-01-2010), SallyC (11-01-2010)
Old 11-01-2010, 02:42 PM #9
clarkstar's Avatar
clarkstar clarkstar is offline
Member
 
Join Date: Aug 2010
Posts: 316
10 yr Member
clarkstar clarkstar is offline
Member
clarkstar's Avatar
 
Join Date: Aug 2010
Posts: 316
10 yr Member
Default

best of luck on this! i have no idea what it's all about but now i will look!
clarkstar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (11-01-2010), SallyC (11-01-2010)
Old 11-01-2010, 07:24 PM #10
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Thank you for your well wishes.

No Cyn, I am not better yet. this bug is kicking my buttski. I just want to lay down and let the flu bug stop bugging me. I think the UTI is getting a bit better, but still uncomfortable. (sigh)

I am still fighting, trying not to relapse. Why did I have to get sick and need steroids when I can't have them before the procedure?

What kind of luck is hanging over my head? I am resting so much now. Before it hit I couldn't sleep, now that's all my body wants to do. I guess you have to be careful what you wish for, ya think?

Thanks Jim, I pray your family member see great improvements. Some get it right away, some it takes times, up to six months.

This is not a trial. It is the Liberation Procedure, with data collection to show the naysayers that this really helps so many people. It is in the early stages (two years). Many of us can't wait ten years for the NMSS and some clinical trials to agree.

We know it works. Besides, who needs to have blocked jugulars? That's not normal even in a non-MS body. If it's broken, it needs to be fixed.

Thanks Kajun, Wiz, Pud's friend, Nurse Nancy, Linda, Sally, Judy, Laura, Lynn, Dej, Kitty, Twink, Eddie, and all of you who read my thread and said thanks. You don't know how important your thoughts and well wishes mean to me.
Thank you all.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Aarcyn (11-01-2010), Dejibo (11-05-2010), dmplaura (11-02-2010), SallyC (11-01-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
A Definition Question- re meaning of "Full Body RSD" and "Internal RSD" ?? Cake Reflex Sympathetic Dystrophy (RSD and CRPS) 12 04-28-2013 10:47 AM
So which "existing" diabetes drug turns the PGC-1 Alpha "Master Switch" back on? caldeerster Parkinson's Disease 22 07-13-2011 11:23 AM
"The Liberation Treatment" Documentary poetic license Multiple Sclerosis 7 11-22-2009 11:50 AM
Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," FaithS The Stumble Inn 12 09-16-2009 04:42 PM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM


All times are GMT -5. The time now is 07:24 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.