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Old 10-30-2010, 04:35 PM #11
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Originally Posted by missj View Post
On days like that I wear my t-shirt that says
"I do the MS Walk everyday"
I need a t-shirt like that!

I was picking up a prescription one day and went inside because I needed to get a couple of other things, too. I lost my balance while standing at the pharmacy counter and stumbled a little before I regained my balance. There was a lady waiting with her daughter and I saw them exchange a look....and then the mom made a "drinking from a glass" signal to her daughter. I saw it and it really hurt my feelings that someone would just jump to that conclusion. Plus, it was only about 10 AM! I quietly walked up to her and said that I had seen her motion to her daughter the "drinking" signal and that I had not been drinking...I had MS and my balance was affected by it. Her daughter looked mortified and went and sat in a row of chairs waaaaaay at the other end of the pharmacy counter! The lady was flustered but managed to say "oh, I know someone with MS and it's a terrible thing to have". She offered no apology....nothing. I didn't say anything else to her - she had done enough damage all by herself and didn't need anymore help from me. People can be so ignorant.
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Old 10-30-2010, 06:00 PM #12
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I always tell people that I need a T-shirt which says, "It's not a stroke. However, I am a stroke". I should get one. Wish I could dance again.
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Old 10-30-2010, 06:55 PM #13
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I always tell people that I need a T-shirt which says, "It's not a stroke. However, I am a stroke". I should get one. Wish I could dance again.
LOL! I saw a man wearing a t-shirt that said "Keep staring. I might do a trick!". I don't know what ailment he had.....but the shirt was funny!
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Old 10-30-2010, 07:36 PM #14
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I wish it would just do what ever it's on it's way to doing and get it over with.My body is not doing and going where I want it to. I feel like I'm staggering around and I don't like it one bit.

I don't know if I'm in a relapse or if I'm just getting progressively worse. But it's making me sad.

Sorry, just needed a shoulder to cry on...and I know you are out there friends!
I have the Ermma Bombeck personality that seems to find utterly funny-like when I go falling into the walls or I "plan"to move forward but my bady falls backwards three steps. My family n friends always give the horrified laugh and I'm not sure which I find funnier-their looks of panic or my totally disobedent body!! The good news is that it too will pass-hopefully-usually..and least after 2 to 3 months but then again...its like the weather...changing seasons all the time. Maybe we are all just perfect weather vanes!! LOL
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Old 10-30-2010, 08:01 PM #15
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Ah gee...I'm sorry you have to deal with this. Changing seasons have a bad effect on a lot MS'rs, I think I saw an article done on it somewhere recently, too. Maybe on WebMD?
Don't remember the last time I walked normally. I've often said I should take up drinking as maybe that would straighten me out. ...I keep my cane in the car for any public walking, stumble around the house on my own.
Hoping things improve soon and that you don't worry about it too much!
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Old 10-30-2010, 09:43 PM #16
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Feel better soon F2U..((hugs))
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Old 10-30-2010, 10:46 PM #17
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Thinking of you and hoping you feel better soon...

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Old 10-30-2010, 10:48 PM #18
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There have been many, many times when I seem to be progressing but my mind and body have bounced back many times. Just think of this as a temporaray setback. I hope you'll feel better soon.
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Old 10-30-2010, 11:25 PM #19
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None of us really knows what our body is going to do, when, or for how long. My position is why stress about it. Maybe I'm just more "seasoned" than many of the people new to this disease and my perceptions of life have changed a great deal also.

Not only do I not walk well even with forearm crutches, I am also very animated with the involuntary movements. I fall down more often now but I make sure not to really share that with my wife if she is not a witness.

There has been talk of getting around in the house. I now have a top-of-the-line power wheelchair made in Sweden I use only in the house. It weighs 280lbs. and completely custom built to my measurements allowing me to get everywhere in the house but the two bathrooms. I use it about 75% of the time. The rest of the time I get around, barely, using my forearm crutches.

My wife says, since my disease has progressed and I try to move short distances without the wheelchair, that she didn't know she was living with a drunk Captain Jack Sparrow. I used to wall walk and furniture bounce. No longer because I can't trust my balance at all. Besides, they decided not to make it an Olympic event so what's the use, right?
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Old 10-31-2010, 02:34 AM #20
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So sorry you're in a bad place right now F2U. As others have mentioned, the weather could be playing a part since most symptoms get worse when the barometer is falling. Didn't I hear that recently the lowest barometer reading EVER RECORDED happened with the last batch of storms that crossed the country? This is my bad season too. Hope you'll be feeling better soon!
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