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Old 11-15-2010, 07:57 PM #11
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It definitely can be a MS problem. The only thing that works for me is miralax. I use it almost every day. I also take two benefiber. My doctors have ensured me that it is safe. My neuro asks me at every visit if I am experiencing any bladder or bowel problems.
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Old 11-15-2010, 09:48 PM #12
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I'm a lot better this evening...phew! I hate vomiting...and will do almost anything to prevent it. And the other...well, at least it took care of my problem.

Now my restless leg syndrome has had a sever uptick. I actually noticed that my med wasn't preventing the legs from fidgeting as well, so have been taking it 2 hrs early.

anyway, by about 3 pm this afternoon, I was going crazy with the involuntary movement/cramping of my legs. I finally listened to DH and called the neuro. he called back 2 hrs later and told me to drop the requip and take neurontin until I see him next week.

he was actually kind of snarky on the phone...told me to take the neurontin like I was supposed to in August..."If you actually did take it." One thing I do with this doc is follow orders...I don't like docs as a breed, but I respect this guy. But I was kind of teed off after I hung up the phone.

whatever...I'm kind of sensitive anyway...
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Old 11-15-2010, 10:57 PM #13
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Quote:
Originally Posted by Debbie D View Post
he was actually kind of snarky on the phone...told me to take the neurontin like I was supposed to in August..."If you actually did take it." One thing I do with this doc is follow orders...I don't like docs as a breed, but I respect this guy. But I was kind of teed off after I hung up the phone.

whatever...I'm kind of sensitive anyway...
Doctors and their "holier than thou" attitudes. I've become so unimpressed with the lot of them........I never used to be this way till I was dx with MS.
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Old 11-16-2010, 07:21 AM #14
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wow....I learn something new everyday. I too suffer from constipation, but had no idea it could be related to my MS.
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Old 11-16-2010, 04:08 PM #15
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I hear ya Kitty...I need a coach, not a white knight swooping me up to save me...

I had an awful night last night...the RLS was treating my legs like I had Parkinson's...full up twitching of the leg from a tightening of the quads that would make my leg raise up. I tried to fight it but it's impossible.
I had to get up and walk, couldn't even sit on a chair. I was awake til 3 am. I should call the neuro and ask if I should take more neurontin, but now I'm so peeved I don't want to...
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Old 11-17-2010, 07:24 PM #16
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Isn't this a fun topic. I tried everything everyone has talked about - Activia did worked for me but wasn't really in the mood to eat yogurt every single day.

What has worked for me and everyone I have recommended it to (all Loved its effects too) is Fiber Choice. Works like a dream and you wont believe how regular you will become.

Plus its a chewable with fruity flavors - yummy.

My understanding for the constipation is that when fatigued or in a flare the messages are not being received down there plus there could be inflammation.

So, as I go into a flare and know my body system is slowing downwards to SLUG land I then increase the fiber more in my diet and take a fiber choice AM and PM. It has dramatically improved bowel function regularly.

I usually only take one every AM except during flare up periods.

You'll feel like you are five years old again doing a quicky in the bathroom.

My friends and I call it "the Perfect BM!!"

TRY IT - YOU'LL LIKE IT!
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Old 11-20-2010, 11:40 PM #17
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Magnesium also keeps me regular. I have to have a lot, at least 800 mg a day, prescribed by neurologist for spasm and jerks. This automatically removed my years of constipation.
In fact, sometimes must eat blackberries to slow it down (blackberries are only fruit that does this, to my knowledge).

On the other hand, the food which I find is most helpful in removing constipation is canned pears. I don't know about fresh pears. Canned ones I have used on those rare
occasions when I have constipation now. I had a blocked bowel several times in the years before magnesium, so I know what it is! Took medical intervention a few times.
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