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11-19-2010, 12:08 PM | #11 | |||
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In Remembrance
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That is very good, Deb, thanks, but if you are having spastic pain, then just do a light version of this and also, right before bed. Otherwise you'll be all revved up and ready to go, instead of sleep.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Vonn07 (11-23-2010) |
11-19-2010, 03:58 PM | #12 | ||
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Member
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Vonno - At PT they wrap legs/arms etc in big chilled wraps-it really soothed my aches and pains. Plus at PT while the ice pack is on they attach electrodes to exercise the inner muscles to help - so at home when my legs or arms are real achy I have bought a number of "flexible" ice packs (found at Walgreens) that chill and then wrap them on sore muscles when Im at home.
Very soothing...I had always used heat wraps before with no relief - but the coolness does help me.
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DX: Graves Disease DID=Dissociative Identity Disorder Kidney Disease Liver Disease MG Occular MS - Bladder/Bowels/cognitive/muscular/fatigue Partial Complex Seizures of Frontal/occipital focal radiating into an encephalic whole brain high intensity centralizing in autonomic system area. Brain atropy/brain tumor/brain skull thickening Transient Periodic Paralysis . . . . |
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11-23-2010, 01:50 PM | #13 | |||
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Magnate
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thanks, Deb & Tresa!! both options sound great ...
and Deb - I've started working my legs more ... and it's been helping!! Tresa - the ice packs make sense!! I was holding something cold from out of the freezer (I think it was a gallon of ice cream!!) ... and my leg calmed down and felt better .. UPDATE: have pain when standing brushing/fixing my hair ... or doing the dishes ... not too bad ... the nurse from neuro's office increased the gabby ... and hopefully that's making a difference! possibly a flare?? onward, right? thanks for taking the time to post!!
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Vonn RRMS - April 2007 It takes only a single idea,
a single action to move the world! The Power of One! |
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"Thanks for this!" says: | SallyC (11-27-2010) |
11-27-2010, 11:07 AM | #14 | ||
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Go to the National MS Society site and look for stretching exercises in their search bar. Print out their drawings and instructions. It is very important to try to do them daily.
Their exercises were put together by therapists and stretch all your muscles. After you do it a few times, it takes around 10 to 15 minutes to them. You can also go to your NMSS's Chapter Meetings or 'just' find out when their swim classes are held. Most offer free swimming classes to their members. You do not have to have a definite MS diagnosis nor to you have to give money (donations) to the National MS Society. Take care. Last edited by 0357; 11-27-2010 at 01:12 PM. Reason: Wording |
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"Thanks for this!" says: | SallyC (11-27-2010) |
11-27-2010, 04:44 PM | #15 | ||
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Dear All: All I can say is that I used to be unable to walk...had sore pain in thigh muscles and upper arms always...went to PT where stretching exercises and muscle building exercises began after using muscle stimulation for six weeks.
THEN I bought a dog...today Buddy and I went for a 2 1/2 hour walk up on the boardwalk!!! Cool, crisp day with frost on the ground. Deer were running about as were the bunnies-Buddy's favorite chase of course. I got home and could not believe we had been out walking for that long. It was such an exciting adventure. I'm not going to say it was easy...it was hard...really hard to keep going day after day. And, for the last two weeks I have been in a flare but not anywhere near as bad as they used to be. The only thing I can honestly say is that it was like trying to learn to walk all over again and then to keep on walking, and walking. I could never have achieved this level of independence (so much atrophy, pain and imbalance issues) without my dog. A cheerleader through and through and I HAD to have a cheerleader. I am still in shock over the progress and really cant explain it. I do know that if I stop walking I would decline rapidly so I push myself to keep going. Great thing is that my muscles are no longer screaming in pain and the tiredness is a good tiredness. For me, the signals are sluggish in the brain and its as if I am trying to get and keep the brain working. I also have to "think" to move a limb - not as much anymore but in the beginning-I had to retrain my brain to work again. It felt like there was nothing but a heavy weighted swamp of mush up there. This has been my experience...hope it can encourage or inspire others. Oh, and I'm 60 yrs old too. So you are NEVER too young to try! Each day I push buddy and I to go farther. Today I felt as if I had gone to the Olympics!!!
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DX: Graves Disease DID=Dissociative Identity Disorder Kidney Disease Liver Disease MG Occular MS - Bladder/Bowels/cognitive/muscular/fatigue Partial Complex Seizures of Frontal/occipital focal radiating into an encephalic whole brain high intensity centralizing in autonomic system area. Brain atropy/brain tumor/brain skull thickening Transient Periodic Paralysis . . . . |
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11-29-2010, 07:46 PM | #16 | ||
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New Member
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12-03-2010, 02:42 PM | #17 | ||
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"Thanks for this!" says: | SallyC (12-03-2010) |
12-03-2010, 09:21 PM | #18 | |||
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Sounds crazy, but make sure your hips are straight. Bad gait can make your hips uneven and that can cause things to feel much worse.
Try: Laying on your back with left leg outstretched and left knee only slightly bent. Bring right knee up to about stomach area. Put both hands against right knee and PUSH your knee forward but PUSH your hands back against the knee. (Tug of war) Push with knee toward head and push away with hands away from torso. Now with the right leg relaxed, bring left leg up and bent at knee. This time grasp the knee with both hands and try to push the knee away while hands fight to bring knee towards torso. Alternate this excercise to push each side of the hip into place. AND: Ask your doc for some lanacaine (or ladacaine... not sure how its pronounced) patches for when the pain is stubborn. Its the same stuff they numb the mouth with at the dentists and it comes in a nice size patch great for the quadraceps.
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. If you obsess about things that may happen and they don't come true...then you've wasted your time. If it does come true....then you've lived it twice. . Last edited by karilann; 12-03-2010 at 09:23 PM. Reason: spelling |
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