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Old 11-17-2010, 02:00 PM #1
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Default Left Leg - Constant Pain .. ideas?

if I could cut my left leg off at the thigh - I would be normal (well, close to it) .. the nurse called back (had to refill on copax and up the gabby, if possible) .. the pain doesn't go away, the tramadol doesn't take any edge off ... and when I walk - I have to "think" to move my left leg forward ... anyone deal with this?? is this how MS comes about? I haven't been pain-free with this leg for over 3 weeks now ..

my left side and my right foot drop, and some other issues - threw me into the MS category ...

thanks - any ideas? or vitamins?
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Old 11-17-2010, 02:07 PM #2
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Sorry to hear about your leg pain. I hope someone here has some ideas because I'm experiencing the same with my right leg. This isn't new.....and I suspect it's the cool weather and/or barometric pressure changes causing it.....but it seems like it's always throbbing.

Does your leg ever just give out from under you? Mine has been doing this quite frequently and this is a new thing. I can be walking along and it just gives out. No warning.....nothing. Just like it decides to quit. Strange and a little scary.
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Old 11-17-2010, 02:16 PM #3
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Hi Vonn It could be that an improper gait is causing your pain. A little PT may help?
Sometimes you have to learn to walk again.

I, mostly just transfer now, not much walking and when I do it improperly....OUCH for days. I hate taking drugs for pain, unless it's excruciating pain.

I do stretches (laying down) straightening my legs and the bringing my knees up slowly to my chin (sometimes I have to help with my hands to bring my left knee up). This helps strengthen your back, too.

Good wishes.
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Old 11-17-2010, 02:42 PM #4
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I have no advice, just hugs
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Old 11-17-2010, 02:54 PM #5
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Hey Kelly - sorry to hear about your right leg issues .. I'm so glad that it's my left leg .. then I can drive and stretch it out or bring my knee up ... I have to sleep with it elevated ... and it hasn't happened yet about giving out - but it's a weird sensation and you just want to 'slap' it or something! that's why the gabapentin again .. but, I'm tired of having these pills always have 'weight gain' issues ... working on that!

Sally - I do alot of stairs (the computer is in the basement) ... and leg lifts at night .. but, nothing seems to help ... and I'm not giving up - and understand how your leg can hurt if you're on it too much .. I just have to sit ... at least for a little while .. then I can stand and walk .. but, just standing is a killer! hope you are doing fine

thanks for the hug, Deb - THEY are always a help!! and laughter!!
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Old 11-18-2010, 02:23 AM #6
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No advice. i have no ideas!
will be following the thread to see if anyone has any ideas since i'm in the same boat as you...
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Old 11-18-2010, 05:49 PM #7
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hi vonn,

i have a similar problem with my Lt leg. and thankfully, i can drive too.
i used to be on neurontin, then switched to lyrica and that helped a lot. i still have pain in my leg and foot but much better.

and this is weird but my pain starts to escalate about 5 pm.
heat and massages help but that's minimal.
did you share this with your neuro?

i agree with a PT consult. and if they find something like a gait problem or drop foot they are more apt to have weight when they report to the dr. i think there's also some brace you can wear for drop foot.
's from me too.

it's so hard to deal with all these problems.
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Old 11-19-2010, 03:58 PM #8
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Vonno - At PT they wrap legs/arms etc in big chilled wraps-it really soothed my aches and pains. Plus at PT while the ice pack is on they attach electrodes to exercise the inner muscles to help - so at home when my legs or arms are real achy I have bought a number of "flexible" ice packs (found at Walgreens) that chill and then wrap them on sore muscles when Im at home.
Very soothing...I had always used heat wraps before with no relief - but the coolness does help me.
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Old 11-23-2010, 01:50 PM #9
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thanks, Deb & Tresa!! both options sound great ...

and Deb - I've started working my legs more ... and it's been helping!!

Tresa - the ice packs make sense!! I was holding something cold from out of the freezer (I think it was a gallon of ice cream!!) ... and my leg calmed down and felt better ..

UPDATE:
have pain when standing brushing/fixing my hair ... or doing the dishes ... not too bad ... the nurse from neuro's office increased the gabby ... and hopefully that's making a difference! possibly a flare?? onward, right?

thanks for taking the time to post!!
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Old 11-29-2010, 07:46 PM #10
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Default be careful of pain meds

Quote:
Originally Posted by Vonn07 View Post
if I could cut my left leg off at the thigh - I would be normal (well, close to it) .. the nurse called back (had to refill on copax and up the gabby, if possible) .. the pain doesn't go away, the tramadol doesn't take any edge off ... and when I walk - I have to "think" to move my left leg forward ... anyone deal with this?? is this how MS comes about? I haven't been pain-free with this leg for over 3 weeks now ..

my left side and my right foot drop, and some other issues - threw me into the MS category ...

thanks - any ideas? or vitamins?
I have left leg pain and have had it for several years, due to surgery---a flap graft closure of a hole in my leg made by a dr. who was removing a sterile abcess and dead tissue from an injection of phenergan. I also have nerve pain in the soles of my feet due to MS. I started on Lortabs, then they sent me to a pain dr. who gave me Kadian, fentanyl patches, and now years of MS Contin. I am trying to get off the MS Contin but am getting withdrawal symptoms and the pain is worse. I've managed to decrease the amount of the morphine by 2/3's the dose I was on, but am stuck at still taking 120 mg/day to stave off withdrawal symptoms. PLEASE try everything short of narcotics to deal with your pain. It isn't worth getting dependent on drugs!
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