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Old 11-25-2010, 01:42 PM #1
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Thumbs up CCSVI Update!!

My Friend Sue's Liberation procedure update.
A Success, so far..

Quote:
A note to say hi and let you know I am back home. It was a rough trip but successful. had blockage in left jugular veins and azynous about 75 percent,50 pecent on left side, said right side looked good but did get angioplaysted on the left side and azynous veins. today I do not have to use cane to walk as left side is getting stronger about was ready to graduate to a walker then w/c as left leg was getting so bad but now it is getting stronger. Incontenance is so much better, double vision is gone, dizzyness is still there but hope that will get better as times go on. cognitive seems better, attitude is so much better even though I am still a b--ch.lol Fatigue seems to be improving overall am totally amazed and so thankful for the results I have seen and hope to see more improvements as time goes on. I know the neuros will probably say this a placebo effect but it is not as how can inconstinance be a placebo as that is so much more improved,

Trip was rough but got through it. Son was fantastic, treatment was billed to medicare . Don't know how much they will pay but will find out.

Now it is time to heal and let my body get use to blood flowing through the body again. Wish everyone could have this done and see some improvements. Met couple from Canada that was going for treatment and couple from Virginia so many are coming from all over to get this done. Hope it will be for all who has MS. Will not be taking Tysabri again, will keep taking LDN for it now and nothing else.

After I get more rested will let you know of improvements. Did not get video of before and after as I was sick that morning and not up to taping will do a video at Christmas as update as son has video camera that he can tape instead of cell phone. Hope you are doing well.


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Old 11-26-2010, 11:17 AM #2
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love it, Sally. What part of the country?
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Old 11-26-2010, 11:51 AM #3
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Quote:
Originally Posted by Aarcyn View Post
love it, Sally. What part of the country?
New York, I believe she said Albany. Her DSon took her and is paying what Medicare doesn't pay.

I'm anxious to see if the improvements hold and keep coming. I think that eventually all angio patients will need a stent?

Praying and keeping fingers crossed for Sue and also for Lady's upcoming procedure.
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Old 11-26-2010, 01:35 PM #4
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Thank you for the post, Sally! I had an MRV Wed, will find out the results on 12/3. I may need to ask for more info from your friend as to the procedure and how she found the Dr in Albany.

I hope Sue does better n better

Linda
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Old 11-26-2010, 02:52 PM #5
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Sally,

i feel dumb asking this Q but i'm confused.
we're talking about clearing out blockages in the jugular veins?
if we are, how does that connect with MS and sx's?

i am not seeing the big picture here but glad sue is doing so much better.
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Old 11-26-2010, 03:20 PM #6
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Here is a website that should explain it all, Judy..


http://csvi-ms.net/en
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